Transplantation: Blood and Marrow
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Because we want to be sure that our visitors find the most relevant resources, we've listed these organizations in order of relevancy from most specifically relevant to most generally relevant to the topic of this page.
BE THE MATCH
Contact: (800) 627-7692 (General Information); (888) 999-6743 (Patient Advocacy); (612) 627-8140 (International)
Population served: Patients with diseases that can be treated by a bone marrow or cord blood transplant worldwide
BE THE MATCH is dedicated to creating an opportunity for all patients to receive the bone marrow or umbilical cord blood transplant they need, when they need it.
- Office of Patient Advocacy is staffed by case managers who answer questions about the process of bone marrow and cord blood transplant as well as life after a transplant
- Helps patients who have limited insurance pay for BE THE MATCH Registry search costs and/or some post-transplant costs. U.S. residents in financial need are eligible
- Provides publications about the donor process and the patient transplant process
- Assists those interested in joining the bone marrow registry
- Provides contact information for sites where volunteers may be tested to become donors
- Provides information about planning for a transplant and its expenses
- Offers free educational information, via telephone presentations, on topics related to bone marrow and cord blood transplant
Blood and Marrow Transplant Information Network (BMTIN)
Contact: (888) 597-7674
Population served: Patients needing a transplant and their caregivers in the United States and Canada
BMTIN is dedicated to serving the needs of persons facing a bone marrow, blood stem cell or cord blood transplant. It provides medical information in easy-to-understand language, so that patients can be active, knowledgeable participants in their healthcare planning and treatment.
- Provides detailed information about transplant centers
- Provides support services for patients and caregivers
- Provides help to patients having difficulty securing insurance reimbursement for transplant
- Provides a list of possible drugs used during transplant and explains their use and potential side effects
Population served: Patients, caregivers, and anyone looking for resources around stem cell transplantation
ExploreBMT, an easy-to-search web portal, is the result of collaboration by several organizations. It allows users to browse through multiple resources and services needed throughout the transplant journey, from diagnosis through survivorship. Users can search for resources according to:
- The age of the patient (pediatric, adult)
- The phase of transplant
- The type of resource needed
American Bone Marrow Donor Registry (ABMDR)
Contact: (800) 745-2452
Population served: Patients needing transplant and potential donors worldwide
ABMDR works to educate and recruit potential marrow donors and effectively maintain the associated donor records. The organization coordinates and processes patient search requests and provides comprehensive assistance to patients and physicians throughout the search process.
- Instructs on the process of becoming a bone marrow donor
- Provides information about human leukocyte antigen typing within the family
- Searches are coordinated through The Caitlin Raymond International Registry
Population served: Stem cell transplant patients and their caregivers worldwide
BMTSupport.org provides peer support and education regarding stem cell transplant at every stage of the process.
- Provides peer-to-peer support via a hosted live chat room
- Provides financial aid to defray the cost of donor drives
- Provides links to various transplant-related resources
Gift of Life Bone Marrow Foundation
Contact: (800) 962-7769
Population served: Patients needing a transplant and stem cell donors worldwide
Gift of Life tests and registers donors, manages its registry and strives to increase the representation of Jewish donors.
- Provides educational materials
- Facilitates donor drives
- Manages a cord blood bank and partners with the European Marrow Donor Information System and the National Marrow Donor Program
National Bone Marrow Transplant Link (nbmtLINK)
Contact: (800) 546-5268
Population served: Patients needing a stem cell transplant and their caregivers in the United States
Its mission is to help patients, caregivers, families and the healthcare community meet the many challenges of transplantation by providing information and support services.
- Provides educational and emotional support
- Provides telephone support groups with a volunteer support program
- Provides educational materials, an online library and a resource bank
National Transplant Assistance Fund (NTAF)
Contact: (800) 642-8399
Population served: Patients needing a transplant and their caregivers in the United States
NTAF helps patients and their families organize, launch and sustain grassroots fundraising campaigns by providing fiscal accountability for the funds raised and weekly disbursements for medical care.
- Provides support, education and expertise to patients, their families and communities to help them privately raise funds for transplants
- Offers educational materials and newsletters about NTAF and its services
- Offers a resource listing for transplant patients
- Provides a message board for peer support
The Bone Marrow Foundation (BMF)
Contact: (800) 365-1336
Population served: Patients needing a transplant in the United States
BMF works to improve the quality of life for people who are undergoing transplantation for cancer and genetic disorders.
- Provides a financial aid program, resource listing and list of transplant centers in the United States
- Provides SupportLine - a free service that connects patients and caregivers undergoing a transplant with patients and caregivers who are post-transplant
- Offers Ask the Expert - a question-and-answer service where patients can email questions to medical professionals about bone marrow and stem cell transplantation
- Provides publications about transplantation and related topics
Icla da Silva Foundation
Contact: (866) 336-4252
Population served: Patients with any disease needing a stem cell transplant worldwide, with focus on Latin America
Its mission is to promote quality of life and improve patient access to bone marrow from volunteer unrelated donors.
- Provides financial aid, information and emotional support to patients with blood cancers
- Provides referrals to patients searching for medical professionals, treatment or transplant centers
- Provides search assistance to patients and families looking for a compatible bone marrow/stem cell match
- Educates potential marrow donors and sponsors donor drives
- Provides specialized outreach and retention programs for minority communities
- Provides limited services to patients coming to New York for treatment, helps to arrange housing and find a treatment center