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Lymphatic Research Foundation
Population served: Patients with lymphedema and lymphatic diseases, as well as medical professionals studying these diseases
Mission: To advance research of the lymphatic system and to find the cause of and cure for lymphatic diseases, lymphedema, and related disorders; to increase public and private funding for lymphatic research and to increase public awareness.
- Funds research into lymphatic diseases through research fellowships and a funded chair at Stanford University
- Launched a tissue bank and patient registry for research purposes
- Publishes a peer-reviewed journal, Lymphatic Research and Biology
- Hosts medical symposiums for patients and health professionals.
National Lymphedema Network
Population served: Patients, health professionals worldwide
Mission: To create awareness of lymphedema through education, and to promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema.
- Provides referrals to lymphedema treatment centers, health professionals, training programs, suppliers, support groups, pen pals/net pals, clinical trials
- Offers financial aid for compression garments to eligible patients
- Offers quarterly newsletter, online resource guide, educational materials for patients and health professionals
- Supports research into the causes of lymphedema and possible alternative treatments
- Biennial international conference for health professionals.
Patient Advocate Foundation (PAF)
Population served: People in the U.S. with chronic, life-threatening and debilitating illnesses
Other language(s): Spanish, translation services available by phone
Mission: To provide professional case management services to Americans with chronic, life threatening and debilitating illnesses.
- PAF Case Managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis; may also be assisted by doctors and healthcare attorneys. PAF seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
- Offers PAF authored publications and content, distributes booklets and publications
- Offers an annual scholarship program for survivors
- PAF Co-Pay Relief Program provides direct financial assistance to insured patients who meet certain qualifications to help them pay for the prescriptions and/or treatments they need. This assistance helps patients afford the out-of-pocket costs for these items that their insurance companies require.