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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

Aplastic Anemia & MDS International Foundation
Contact: 800-747-2820
Population served: Patients with Aplastic Anemia, Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases and their families

Mission: To support patients and families worldwide living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases

Resources include:

  • Free educational materials, the latest medical and treatment information, and clinical trials information
  • Online Learning Center, with webcasts, interviews with experts, interactive learning modules, live webinars
  • Guidance for living well with bone marrow failure diseases
  • Support Connection enabling patients to talk with trained patient volunteers who share treatment experiences and provide emotional support
  • Communities of Hope: Volunteer-led local groups connecting patient and families for peer support and information exchange
  • Matthew Debono Memorial Scholarship Fund for students who are U.S. residents age 35 and under, diagnosed with a rare bone marrow failure disease (aplastic anemia, MDS or PNH) and who meet all other eligibility guidelines.

Fanconi Anemia Research Fund
Contact: 888-326-2664
Population served: Patients and families affected by Fanconi anemia

Mission: To find effective treatments and a cure for Fanconi anemia (FA) and to provide education and support services to affected families worldwide.

  • Provides information on disease and treatment, including fact sheets and newsletter
  • Offers information on clinical trials and testing centers internationally
  • Manages online support groups and an international family support network
  • Offers informational meetings and support services
  • Sponsors research grants
last updated on Tuesday, March 25, 2014

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