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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

Amyloidosis Foundation   
Contact: 248-922-9610
Population served: Patients and caregivers affected by amyloidosis, worldwide
Other language(s): Spanish

Mission: To raise awareness of amyloidosis and support medical and scientific research toward a cure; to provide assistance to patients in understanding the disease and in finding doctors with experience with amyloidosis.

  • Produces educational materials and newsletters
  • Provides information about clinical trials for amyloidosis
  • Provides a listing of institutions and medical schools with experience in amyloidosis.

Amyloidosis Support Groups Inc.
Contact: 866-404-7539
Population served: People diagnosed with amyloidosis and their caregivers in the U.S.
Other language(s): Spanish

Mission: To assist amyloidosis patients, caregivers and former caregivers.

  • Funds and maintains libraries of educational materials for all support groups
  • Maintains a 24/7 toll-free line to answer all support inquiries
  • Offers referrals to face-to-face support meetings; online support via a listserve mailings
  • Sponsors amyloidosis symposiums for education purposes throughout the year
  • Provides information about clinical trials for amyloidosis
last updated on Wednesday, October 16, 2013
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