Resource Center

More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

The Word:

Your order contains  item(s)  View Order

Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

Amyloidosis Foundation   
Contact: 248-922-9610
Population served: Patients and caregivers affected by amyloidosis, worldwide
Other language(s): Spanish

Mission: To raise awareness of amyloidosis and support medical and scientific research toward a cure; to provide assistance to patients in understanding the disease and in finding doctors with experience with amyloidosis.

  • Produces educational materials and newsletters
  • Provides information about clinical trials for amyloidosis
  • Provides a listing of institutions and medical schools with experience in amyloidosis.

Amyloidosis Support Groups Inc.
Contact: 866-404-7539
Population served: People diagnosed with amyloidosis and their caregivers in the U.S.
Other language(s): Spanish

Mission: To assist amyloidosis patients, caregivers and former caregivers.

  • Funds and maintains libraries of educational materials for all support groups
  • Maintains a 24/7 toll-free line to answer all support inquiries
  • Offers referrals to face-to-face support meetings; online support via a listserve mailings
  • Sponsors amyloidosis symposiums for education purposes throughout the year
  • Provides information about clinical trials for amyloidosis
last updated on Wednesday, October 16, 2013

Get Information
& Support

Contact an Information Specialist.



Finding an appropriate clinical trial for patients with leukemia, lymphoma or myeloma has become much easier with the TrialCheck® website.

learn more