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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

2-1-1
Population served: Everyone in the U.S. (check the website for availability in your area) 

Mission: 2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.  

Examples of service referrals include:
  • Physical and mental health resources: medical information lines, crisis intervention services, counseling, drug and alcohol intervention
  • Basic human need resources: food banks, clothing, shelters, rent assistance and utility assistance
  • Employment support: unemployment benefits, financial assistance, job training, transportation assistance and education programs
  • Support for older Americans and persons with disabilities: home healthcare, adult daycare, congregate meals, Meals on Wheels, respite care, transportation and homemaker services
  • Support for children, youth and families: childcare, family resource centers, summer camps and recreation programs, mentoring, tutoring and protective services.

2-1-1 Canada
Population served:
Certain sections of Canada (check the website for availability in your area)

Mission: 2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.

Examples of service referrals include:

  • Health services and support
  • Financial and social assistance
  • Housing and utility help
  • Food assistance and meal programs
  • Senior services and home care
  • Government program assistance
  • Parenting and family programs
  • Disability support services
  • Volunteer organizations
  • Newcomer services
  • Mental health support

American Fertility Association (AFA)
Contact:
(888) 917-3777
Population served: Adult patients and healthcare providers worldwide 

Mission:  provides information about fertility treatments, reproductive and sexual health and family - building options, including adoption and third-party solutions.

  • Provides a call center with information about support groups and other patient issues
  • Offers online information about options, medical treatments, coping techniques and legal/insurance issues
  • Provides online education materials and newsletters for patients and professionals
  • Offers support via online message boards, a weekly chat series and a daily blog
  • Offers the teleconference Coaching Groups
  • Provides a listing of reproductive specialists and therapists in the United States

American Society for Reproductive Medicine (ASRM)
Contact:
205-978-5000
Population served: Patients, caregivers and health professionals in the U.S.
Other language(s): Spanish

Mission: ASRM is a multidisciplinary organization dedicated to the advancement of the art, science and practice of reproductive medicine. The Society accomplishes its mission through the pursuit of excellence in education and research and through advocacy on behalf of patients, physicians, and affiliated health care providers. 

  • Provides educational materials on infertility, menopause, contraception, reproductive surgery, endometriosis, and other reproductive disorders
  • Offers Find a Health Professional Search tool via the website.

Fertile Action
Contact: Website only
Population served: Women touched by cancer

Mission: To help women touched by cancer become mothers through education, advocacy and financial aid for fertility preservation, sperm donation, egg donation, surrogacy and long-term storage of sperm, oocytes, and embryos.

  • Offers grants for:
    • Female Fertility Preservation
    • Parenthood After Cancer Treatment including In Vitro Fertilization, Egg Donation and Surrogacy
    • Sperm Donation
    • Long Term Storage of Eggs and Embryos
  • Educates through physician in-services, its Oncofertility Network Radio & TV show, in person via the Parenthood After Cancer Treatment (PACT)Educational program and through social media @fertileaction on Facebook and Twitter.
  • Offers Peer-to-Peer Support via email, phone, Message Boards and with online support groups.
  • Engages in advocacy to affect legislation and insurance benefits that improve access to fertility preservation.

Fertile Hope
Contact: 855-220-7777
Population served: Cancer patients and survivors in the U.S.
Other language(s): Spanish

Mission: Fertile Hope is a national LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.

  • Through the Fertile Hope Program for Men and Women, help is offered to clients to obtain discounted rates on fertility preservation.  For women, they are eligible for a free cycle of fertility preservation medications
  • Fertility education, discounts on fertility services
  • Access to LIVESTRONG's Cancer Navigation Services

Fertility Authority
Contact: 212-600-2292
Population served:  Women and men seeking fertility and infertility information, advice, referrals and appointments to local specialists

Mission: To be a comprehensive, interactive online network for women - and men - seeking fertility and infertility information, advice, referrals and appointments. Our website is designed to provide quality information on a wide range of fertility topics, as well as simplify your search for a trusted fertility doctor or fertility clinic.

Hope for Two ...The Pregnant with Cancer Network
Contact:
800-743-4471
Population served: Women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.
Other language(s): Website available in numerous languages

Mission: Dedicated to providing women diagnosed with cancer while pregnant with information, support and hope.

  • Connects women who are going through cancer while pregnant
  • Provides support internationally.

MotherToBaby
Contact: 866-626-6847
Population served: Women who are pregnant or breastfeeding
Other language(s): Spanish

Mission: A service of the non-profit Organization of Teratology Information Specialists (OTIS), MotherToBaby is dedicated to providing evidence-based information to mothers, health professionals, and the general public about medications and other exposures during pregnancy and while breastfeeding.

  • Offers confidential telephone services that provide accurate and current information about the possible effects of a particular drug or substance on a pregnancy or while breastfeeding
  • Supports and contributes to worldwide initiatives for teratology education and research.

The Oncofertility Consortium
Contact: 866-708-3378
Population served:  Cancer patients, health professionals, researchers and educators
Other language(s): Spanish, printed information in Italian

Mission: The Oncofertility Consortium® is a national, interdisciplinary initiative designed to explore the reproductive future of cancer survivors.

  • Provides information about fertility preservation or referral to a fertility preservation center
  • MyOncofertility.org is a web-based patient education resource in both Spanish and English, which educates health-care providers, patients, and patients' families about fertility preservation options when faced with a cancer diagnosis and subsequent treatment.

Resolve: The National Infertility Association
Contact:
703-556-7172
Population served: Men and women with infertility

Mission: To provide timely, compassionate support and information to people who are experiencing infertility and to increase awareness of infertility issues through public education and advocacy.

  • Offers infertility and family-building information, online resources and support, educational podcasts and webcasts, newsletter, speaker bureau, support group directory, professional services directory.

The International Premature Ovarian Failure Association, Inc. (IPOFA)
Contact: 703-913-4787
Population served: Women affected by premature ovarian failure (POF) and their loved ones
Other language(s): Spanish

Mission: To provide community, support and information to women with Premature Ovarian Failure (POF) and their loved ones; to increase public awareness and understanding of POF; and to work with health professionals to better understand this condition.

  • Offers bulletin boards and listserve to enable networking with others
  • Coordinates face-to-face support groups
  • Provides fact sheets, online information about POF and a suggested reading list.

The SAMFund for Young Adult Survivors of Cancer
Contact:
617-938-3484
Population served:  Young adult cancer survivors between the ages of 17 and 35, finished with active treatment and residents of the U.S.

Mission: The SAMFund supports young adult cancer survivors in the U.S. as they recover from the financial impact of cancer treatment. Through direct financial assistance, in-person and online support, The SAMFund helps young adults move forward towards their personal, professional, and educational goals.

  • Grants cover a wide range of post-treatment financial needs (must be related to the cancer experience), such as current and residual medical bills, car and health insurance premiums, rent, utilities, family-building expenses, gym memberships and transportation costs
  • The 2-part application process is open in June of each year
  • Webinars provide information on a range of Young Adult issues and challenges including dealing with medical debt, employment, insurance, and fertility.
last updated on Tuesday, November 26, 2013
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