Resource Center

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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

Alex's Lemonade Stand Foundation (ALSF)
Contact:
610-649-3034
Population Served: Children with cancer and their families, caregivers, young adults, healthcare professionals and researchers related to childhood cancer

Mission: To raise money for and awareness of childhood cancer causes-especially research into new treatments and cures-and to encourage and empower others, especially children, to get involved and make a difference for children with cancer.

  • Hero Ambassador Program involves family members of childhood cancer heroes who choose to get more involved with ALSF.
  • Parent to Parent Network provides the opportunity for families to connect with one another through emails, phone calls, or in person.
  • Childhood Cancer Database Project aims to better understand how childhood cancer affects families. The goal is to measure the personal and economic impact of childhood cancer and find ways to support families through the journey.
  • SuperSibs! ALSF joined forces with SuperSibs, which temporarily suspended its direct sibling support services due to a lack of funding. To sign up for updates about SuperSibs program, click here.
  • Childhood Cancer Symposium is a free annual conference for families of kids with cancer.
  • Childhood Cancer Treatment Journal- ALSF provides a free treatment journal (hard copy or online) to families of childhood cancer. Helps parents stay organized and keep track of important information.
  • Travel Fund offers assistance to families who need to financial assistance for childhood cancer treatment at select medical institutions across the U.S. May include help with transportation, lodging, and meals. Applications must be received on behalf of a social worker or another medical representative. For more details, click here.

Cancer Support Community (CSC)
Contact: 888-793-9355
Population served: People affected by cancer in the U.S.
Other language(s): Spanish

Mission: To provide support, education and hope to people affected by cancer; to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

  • Group Loop - an online community designed to address the needs of teens (13-19) touched by cancer to connect to find support, education and hope while dealing with a cancer diagnosis. For more details click here.
  • Offers support through a network of more than 50 local affiliates and 100 satellite locations
  • The Living Room - an online support community where you can connect with others 24/7
  • Cancer Discussion Boards are an online resource available 24 hours a day, 7 days a week and cover a variety of topics. Receive advice, support and offer tips to other people going through similar cancer experiences
  • Personal Webpage - create a private, personal webpage to help keep family and friends involved and informed. Blog, post photos or videos, and share your calendar with the people who are close to you; they can send comments and offer support or respond to your request for help as well.
  • Frankly Speaking About Cancer - Offers workshops, publications and digital content.
  • Cancer Transition - an evidence-based programs for cancer survivors who have completed their treatment (in partnership with LIVESTRONG).
  • Open to Options - helps patients identify important questions about treatment options based upon personal needs.

Childhood Cancer Canada Foundation
Contact:
800-489-9812
Population served: Children with cancer and their families in Canada

Mission: Dedicated to improving the quality of life for children with cancer and their families by funding research and providing support and resources.

  • Offers National Teen Network which allows diagnosed teens to get in touch with teen survivors who have experienced a similar type of cancer - parents can also speak to a teen or the teen's parents
  • Provides Family Support Kit with information and support for families of newly diagnosed children
  • Provides scholarships for childhood cancer survivors
  • Offers a benevolent fund to assist with funeral expenses
  • Provides support groups for parents and survivors
  • Offers national newsletters, eNews and Teleconference services

First Descents
Contact: 303-945-2490
Population served: Young adults with cancer in the U.S. diagnosed between the ages of 18 and 39 years; also cancer fighters and survivors ages 40 to 49

Mission: Offers young adult cancer fighters and survivors a free outdoor adventure experience designed to empower them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same.

  • Offers various levels of adventure programs such as whitewater kayaking, rock climbing or surfing. Participants cover their own cost of travel. All food, lodging, gear and instruction are included with the activity.
  • Travel scholarships may be available.

Give an Hour (GAH)
Contact:
Website only
Population served: U.S. troops and families affected by the wars in Afghanistan and Iraq and other post-9/11 conflicts

Mission: Give an Hour asks mental health professionals nationwide to literally donate an hour of their time each week to provide free mental health services to military personnel and their families. Individuals who receive services will be given the opportunity to give an hour back in their own community.

  • In addition to direct counseling services, the providers are working to reduce the stigma associated with mental health by participating in and leading education, training, and outreach efforts in schools and communities and around military bases.

HelpPRO
Contact: 
800-652-0155 or website
Population served:  Anyone seeking mental health clinicians in the U.S.

Mission: To improve the public's access to the services of mental health clinicians and organizations. Our vision is that every person in America can readily find mental health services to meet their needs.

  • Therapist Finder carefully identifies users' needs and interests and matches these with our therapists' capabilities. Matching process increases the likelihood that users and therapists will make positive, lasting connections from their very first meeting. Database contains detailed information on thousands of mental health professionals, their services and their organizations across the country.

Kids Konnected
Contact:
949-582-5443
Population served: Children and teens in the U.S. who have a parent diagnosed with a cancer or who have lost a parent to cancer

Mission: Provides "friendship, understanding, education, and support" for children and teens who have a parent with cancer or have lost a parent to cancer.

  • Support groups are headed by Youth Leaders and co-facilitated by licensed professionals; they help kids share their feelings and gain strength from one another
  • Karen's Kids is a bereavement program for kids who have lost a mom or dad to cancer; the five-week program takes a child through the steps of grieving and teaches them how to cope with their tremendous loss
  • Hope the Bear Care Packages are individually tailored to each family; every package includes a "Hope" teddy bear for each child in the family, plus books, workbooks, brochures, and additional information to help the family better cope with cancer
  • Junior Camp is for children from 7 to12 years old; Teen Camp is for those between 13 and 18. Camps provide a fun atmosphere and an opportunity to share and connect with other peers and adults who understand what they are dealing with.

LIVESTRONG Foundation
Contact:
855-220-7777
Population served: Cancer patients and survivors in the U.S.
Other language(s): Spanish

Mission: To inspire and empower people affected by cancer; to provide support to guide people through the cancer experience, bring them together to fight cancer - and work for a world in which their fight is no longer necessary.

  • Planet Cancer connects young adults and helps them access support, advocacy and resources.
  • Provides information on topics that influence the "physical, emotional and practical" effects of cancer
  • Provides free, confidential, one-on-one support to anyone affected by cancer, not just patients, through education, referrals and counseling services
  • LIVESTRONG Fertility- Dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Information about financial resources available here.
  • Maintains a list of LIVESTRONG Survivorship Centers of Excellence, which is comprised of National Cancer Institute(NCI) Comprehensive Cancer Centers. For more details, click here.
  • Offers The LIVESTRONG Guidebook to help cancer patients and survivors as they navigate the health care system.

Nicki Leach Foundation
Contact: 904-686-1010
Populations Served: Young adults between 18-30 who have been diagnosed with a life threatening, malignant medical condition.

Mission: To provide financial assistance to young adults between the ages of 18 and 30 diagnosed with a life threatening, malignant medical condition.

  • Funding may help with car payments, clothes, hair or makeup, purchasing a camera, computer, or travel costs.

Patient Resource Cancer Guides
Contact:
913-725-1600
Population served: Patients and caregivers
Other language(s): Spanish

Mission: To empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.

  • Provides free educational materials, written for ease of understanding, in print and online.

Rise Above It
Contact: alexis.vinick@raibenefit.org
Population served:
Young Adult patients between 15-39, who are currently undergoing or actively pursuing clinical trial treatment options.

Mission: To provides financial assistance to young adult patients between 15 -39, battling cancer who are undergoing or actively pursuing clinical trial treatment options.

  • Requests may be made for medical expenses, housing costs, travel expenses as well as food, clothing and utility bills.

Starlight Children's Foundation
Contact: 310-479-1212
Population served: Seriously ill children and their families in the U.S.

Mission: To bring together experts from pediatric health care, technology and entertainment to create programs that help brighten the lives of seriously ill children and their families.

  • Starbright World is an online social network for teens with chronic and life-threatening medical conditions, and their siblings. For details, click here.
  • In-hospital programs offer parties and entertainment, child-friendly playrooms and lounges
  • Great Escapes provides relaxing, fun-filled events for Starlight families
  • Educational resources including interactive online games, magazines and DVDs.

Stupid Cancer
Contact: 877-735-4673
Population served: Young adult cancer patients and survivors, caregivers

Mission: To empower young adults affected by cancer by building community, improving quality of life and providing meaningful survivorship.

  • Presents The OMG! Cancer Summit for Young Adults annual oncology conference and social networking event for the young adult cancer movement
  • Formerly known as I'm Too Young For This
  • Provides listings of resources as well as books, magazines and other media
  • Offers online support groups, forums and message boards, social communities
  • Offers The Stupid Cancer Show, an international talk radio webcast
  • Offers Stupid Cancer Boot Camps - evidence-based, single-topic, one-day mini-OMG! Summits hosted in your local community

Teen Cancer America
Contact: 310-208-0400
Population served: Young adults with cancer, young cancer survivors, their families and friends

Mission: To advocate for all young people with cancer to have equal access to optimum treatment and care; to encourage and support hospitals to become centers of excellence for caring for teenagers and young adults with cancer.

  • Partners with hospitals around the country to provide strategic guidance to establish specialist units and services for the teenage and young adult community.
  • Develops educational materials to help students, educators and employers learn about cancer and support young people.

The SAMFund for Young Adult Survivors of Cancer
Contact:
617-938-3484
Population served:  Young adult cancer survivors between the ages of 21 and 39, finished with active treatment and residents of the U.S.

Mission: The SAMFund supports young adult cancer survivors in the U.S. as they recover from the financial impact of cancer treatment. Through direct financial assistance, in-person and online support, The SAMFund helps young adults move forward towards their personal, professional, and educational goals.

  • Webinars provide information on a range of Young Adult issues and challenges including dealing with medical debt, employment, insurance, and fertility.
  • Grants cover a wide range of post-treatment financial needs (must be related to the cancer experience), such as current and residual medical bills, car and health insurance premiums, rent, utilities, family-building expenses, gym memberships and transportation costs
  • The 2-part application process is open in June of each year

The National CML Society (NCMLS)
Contact:
(877) 431-2573
Population served: Patients living with CML and their families

Mission: To bring hope to individuals living with CML through educational resources, access to CML specialists, and a living, breathing network of others that can share their personal CML experiences and successes.

  • CML Connection Program provides a patient support network
  • Facilitates peer-to-peer matching
  • Provides referrals for caregivers, counseling, patient assistance programs, respite, blood and marrow drives
  • Offers Ask The CML Expert online portal
  • Sponsors educational events, wellness programs and retreats.

The Ulman Cancer Fund for Young Adults
Contact: 410-964-0202
Population served: Young adults aged 15 - 39 who are affected by cancer - through their own diagnosis or that of a loved one, primarily in the Baltimore, MD and Washington, DC areas

Mission: The Ulman Cancer Fund for Young Adults enhances lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.

  • Offers programs and services providing cancer support, information on health and wellness, advocacy, and education specific to young adults dealing with cancer
  • Provides financial assistance for individuals within the geographic region we serve. Scholarships have some national eligibility
  • Promotes awareness through sports programs to empower individuals in the fight against cancer through active lifestyles
  • Some support provided is done in conjunction with other organizations to ensure the best outcomes.

Young Cancer Spouses
Contact: Website only
Population served: Young adult spouses of people coping with cancer

Mission: To bring together young spouses of adults with cancer to share information, support, and experiences.

  • Free resources
  • Online support groups
last updated on Thursday, August 28, 2014
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