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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

American Cancer Society (ACS)
Contact: 800-227-2345
Population served: People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States
Other language(s): Spanish, Chinese, Korean, Vietnamese

Mission: In the U.S., ACS is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem.

  • Cancer Survivors Network, a global online community, transcends geographic boundaries and builds bonds among cancer survivors and caregivers through shared experiences and feelings.
  • Offers support services via online discussion boards and in-person support groups through local chapters.
  • Provides education materials both online and in print about cancer, including blood cancers, as well as related information such as diet, exercise, complementary and alternative medicine, and disease statistics
  • Road to Recovery, a program offered locally by some chapters, has volunteer drivers who transport patients to and from treatment appointments
  • Look Good, Feel Better program for female adults and teens helps with self-image during chemotherapy and radiation treatments
  • American Cancer Society's Wig Bank provides free wigs from limited supply to needy patients suffering hair loss due to cancer treatment. Intended for those with insufficient insurance coverage for wigs. For more details, click here.
  • Hope Lodges are temporary housing accommodations for patients traveling far from home for treatment. There are more than 30 lodges. For more details, click here

CancerCare
Contact: 800-813-4673
Population served: Individuals, families, caregivers and the bereaved in the U.S. affected by a cancer diagnosis
Other language(s): Spanish

Mission: To provide free, professional support services to individuals, families, caregivers and the bereaved to help them cope with and manage the emotional and practical challenges of cancer.

  • Oncology social workers are available for telephone counseling services to provide support, information and resources to help in coping with cancer
  • Offers online support groups and educational publications
  • Connect Education Workshops in which leading experts in oncology provide up-to-date information in one-hour workshops over the telephone or online
  • Door to Door Program for patients with multiple myeloma provides grants to cover transportation costs such as gasoline, taxi, bus or train fare to and from their doctor's office; must meet certain eligibility criteria
  • Financial assistance for transportation, medications, home care, child care, or durable medical equipment may be available for patients in active treatment. Eligibility guidelines vary depending on diagnosis, gender and geographic location. Call for details.

Cancer Legal Resource Center (CLRC)
Contact:
866-843-2572 or 213-252-8449
Population served: People affected by cancer as well as community groups, employers and health professionals in the U.S.
Other language(s): Spanish

Mission: To provide information and resources on cancer-related legal issues to cancer patients, survivors, caregivers, health professionals, employers, and others coping with cancer.

  • Offers a national, toll-free telephone assistance line where callers can receive free and confidential information about relevant laws and resources for their particular situation
  • Is a joint program of the Disability Rights Legal Center and Loyola Law School, Los Angeles.

Cancer Support Community (CSC)
Contact: 888-793-9355
Population served: People affected by cancer in the U.S.
Other language(s): Spanish

Mission: To provide support, education and hope to people affected by cancer; to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

  • Cancer Transition - an evidence-based programs for cancer survivors who have completed their treatment (in partnership with LIVESTRONG).
  • Frankly Speaking About Cancer - Offers workshops, publications and digital content.
  • Open to Options - helps patients identify important questions about treatment options based upon personal needs.
  • Offers support through a network of more than 50 local affiliates and 100 satellite locations
  • The Living Room - an online support community where you can connect with others 24/7
  • Cancer Discussion Boards are an online resource available 24 hours a day, 7 days a week and cover a variety of topics. Receive advice, support and offer tips to other people going through similar cancer experiences
  • Personal Webpage - create a private, personal webpage to help keep family and friends involved and informed. Blog, post photos or videos, and share your calendar with the people who are close to you; they can send comments and offer support or respond to your request for help as well.
  • Group Loop - an online community designed to address the needs of teens (13-19) touched by cancer to connect to find support, education and hope while dealing with a cancer diagnosis. For more details click here.

Centers for Disease Control and Prevention (CDC)
Contact:
800-232-4636
Population served: Anyone seeking information on health
Other language(s): Spanish

Mission: Collaborating to create the expertise, information, and tools that people and communities need to protect their health- through health promotion, prevention of disease, injury and disability, and preparedness for new health threats; is part of the U.S. Department of Health and Human Services and is the primary federal agency for conducting and supporting public health activities in the U.S.

  • Cancer Survivorship - CDC works with public, non-profit, and private partners to create and implement strategies to help the millions of people in the U.S. who live with, through, and beyond cancer. For more details, click here.
  • Monitors health, detects and investigates health problems
  • Conducts research to enhance prevention and implements prevention strategies
  • Develops and advocates sound public health policies
  • Promotes healthy behaviors and fosters safe and healthful environments
  • Provides leadership and training.

Imerman Angels
Contact: 877-274-5529
Population served: Anyone with cancer

Mission: To provide personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers.

  • Provides a unique matching program in which a "Mentor Angel" is partnered with an individual seeking cancer support. These one?on?one relationships inspire hope and offer support from someone who is uniquely familiar with the experience.

LIVESTRONG Foundation
Contact:
855-220-7777
Population served: Cancer patients and survivors in the U.S.
Other language(s): Spanish

Mission: To inspire and empower people affected by cancer; to provide support to guide people through the cancer experience, bring them together to fight cancer - and work for a world in which their fight is no longer necessary.

  • Maintains a list of LIVESTRONG Survivorship Centers of Excellence, which is comprised of National Cancer Institute(NCI) Comprehensive Cancer Centers. For more details, click here.
  • Offers The LIVESTRONG Guidebook to help cancer patients and survivors as they navigate the health care system.
  • Provides information on topics that influence the "physical, emotional and practical" effects of cancer
  • Provides free, confidential, one-on-one support to anyone affected by cancer, not just patients, through education, referrals and counseling services
  • Planet Cancer connects young adults and helps them access support, advocacy and resources.
  • LIVESTRONG Fertility- Dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Information about financial resources available here.

National Cancer Institute's Cancer Information Service
Contact: 800-422-6237
Population served: People with cancer and their caregivers in the U.S.
Other language(s): Spanish

Mission: To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this confidential service is a federally funded cancer education program.

  • Offers trained information specialists who can answer cancer-related questions on a range of cancer topics, including the most recent advances in cancer treatment.

National Coalition for Cancer Survivorship (NCCS)
Contact:
877-622-7937
Population served: People touched by cancer in the U.S.
Other language(s): Spanish

Mission: To advocate for quality cancer care for all people touched by cancer.

  • Cancer Survival Toolbox is a free, self-learning audio program to help people develop important skills to better meet and understand the challenges of their illness.
  • Advocates for changes in how the nation researches, regulates, finances and delivers quality cancer care
  • Empowers cancer survivors through its publications and programs, which provide tools for self-advocacy
  • Convenes other cancer organizations to address nationwide public policy issues affecting cancer survivors

National Comprehensive Cancer Network (NCCN)
Contact: 215-690-0300; 866-788-6226 for educational events
Population served: Patients, caregivers, health professionals

Mission: To improve the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

  • Incorporates treatment guidelines and limited recommendations for surveillance and management of common issues facing survivors.
  • Alliance of leading cancer centers
  • NCCN Guidelines provide comprehensive and frequently updated clinical practice guidelines
  • NCCN Guidelines for Patients® translate the information that doctors use to help patients and families understand treatment options
  • Offers educational programs and webinars
  • Articles and videos give advice on how to help a loved one with cancer and take care of oneself.

Patient Advocate Foundation (PAF)
Contact: 800-532-5274
Population served: People in the U.S. with chronic, life-threatening and debilitating illnesses
Other language(s): Spanish, translation services available by phone

Mission: To provide professional case management services to Americans with chronic, life threatening and debilitating illnesses.

  • PAF Case Managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis; may also be assisted by doctors and healthcare attorneys. PAF seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
  • Offers PAF authored publications and content, distributes booklets and publications
  • Offers an annual scholarship program for survivors
  • PAF Co-Pay Relief Program provides direct financial assistance to insured patients who meet certain qualifications to help them pay for the prescriptions and/or treatments they need. This assistance helps patients afford the out-of-pocket costs for these items that their insurance companies require. For details, call 866-512-3861.

Survivorship A to Z, Inc.
Contact:
212-586-5600
Population served: People living with cancer or HIV/AIDS and their caregivers, health professionals

Mission: To provide people with a life challenging condition such as cancer or HIV/AIDS with all the practical, legal and financial information they need through the entire continuum after a diagnosis.

  • Online resource for information about employment, insurance, finances, government programs, day to day living, medical care, planning ahead, emotional well-being.

The SAMFund for Young Adult Survivors of Cancer
Contact:
617-938-3484
Population served: Young adult cancer survivors between the ages of 21 and 39, finished with active treatment and residents of the U.S.

Mission: The SAMFund supports young adult cancer survivors in the U.S. as they recover from the financial impact of cancer treatment. Through direct financial assistance, in-person and online support, The SAMFund helps young adults move forward towards their personal, professional, and educational goals.

  • Webinars provide information on a range of Young Adult issues and challenges including dealing with medical debt, employment, insurance, and fertility.
  • Grants cover a wide range of post-treatment financial needs (must be related to the cancer experience), such as current and residual medical bills, car and health insurance premiums, rent, utilities, family-building expenses, gym memberships and transportation costs
  • The 2-part application process is open in June of each year
last updated on Thursday, August 28, 2014
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