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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

2-1-1
Population served: Everyone in the U.S. (check the website for availability in your area) 

Mission: 2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.  

Examples of service referrals include:
  • Basic human need resources: food banks, clothing, shelters, rent assistance and utility assistance
  • Physical and mental health resources: medical information lines, crisis intervention services, counseling, drug and alcohol intervention
  • Employment support: unemployment benefits, financial assistance, job training, transportation assistance and education programs
  • Support for older Americans and persons with disabilities: home healthcare, adult daycare, congregate meals, Meals on Wheels, respite care, transportation and homemaker services
  • Support for children, youth and families: childcare, family resource centers, summer camps and recreation programs, mentoring, tutoring and protective services.

2-1-1 Canada
Population served:
Certain sections of Canada (check the website for availability in your area)

Mission: 2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.

Examples of service referrals include:

  • Health services and support
  • Financial and social assistance
  • Housing and utility help
  • Food assistance and meal programs
  • Senior services and home care
  • Government program assistance
  • Parenting and family programs
  • Disability support services
  • Volunteer organizations
  • Newcomer services
  • Mental health support

Cancer and Careers
Contact:
Website only
Population served: People affected by the diagnosis of cancer, their caregivers and health providers in the U.S.
Other language(s): Spanish

Mission: To empower and educate people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events; to eliminate fear and uncertainty for working people with cancer.

  • Offers a comprehensive website with information on a variety of work-related issues
  • Free printed publications
  • Career coaching
  • Support groups and educational seminars for employees with cancer, their healthcare providers and co-workers
  • Online comprehensive materials for healthcare professionals
  • Resume review available online with career coaches
  • Legal and career teleconferences

Cancer Legal Resource Center (CLRC)
Contact:
866-843-2572 or 213-252-8449
Population served: People affected by cancer as well as community groups, employers and health professionals in the U.S. 
Other language(s): Spanish

Mission: To provide information and resources on cancer-related legal issues to cancer patients, survivors, caregivers, health professionals, employers, and others coping with cancer.

  • Offers a national, toll-free telephone assistance line where callers can receive free and confidential information about relevant laws and resources for their particular situation

Disability.gov
Contact: website only
Population served: All individuals in the U.S. with disabilities

Mission: To provides links for employees and job-seekers with disabilities, information on the ADA, job accommodations and vocational rehabilitation.

Job Accommodation Network (JAN)
Contact: 800-526-7234
Population served: People with disabilities and their families
Other language(s): Spanish

Mission: To develop and influence disability employment-related policies and practices; is a service of the U.S. Department of Labor's Office of Disability Employment Policy.

  • Offers free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.

National Center on Workforce and Disability/Adult (NCWD)
Contact: contact@onestops.info
Population served:
All individuals in the US with disabilities

Mission: To provides information on job retraining, technical assistance and legal rights. 

  • Information on laws and policies related to people with disabilities
  • Accommodations & assistive technology
  • Developing employer relationships
  • Helping customers find jobs
  • Job-related support

Patient Advocate Foundation (PAF)
Contact: 800-532-5274
Population served: People in the U.S. with chronic, life-threatening and debilitating illnesses
Other language(s): Spanish, translation services available by phone

Mission: To provide professional case management services to Americans with chronic, life threatening and debilitating illnesses.

  • PAF Case Managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis; may also be assisted by doctors and healthcare attorneys. PAF seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
  • Offers PAF authored publications and content, distributes booklets and publications
  • Offers an annual scholarship program for survivors
  • PAF Co-Pay Relief Program provides direct financial assistance to insured patients who meet certain qualifications to help them pay for the prescriptions and/or treatments they need. This assistance helps patients afford the out-of-pocket costs for these items that their insurance companies require. 

SuperSibs!
Contact:
847-462-4742
Population served: Children between ages 4 and 18 who have a sibling with cancer in the United States and Canada
Other language(s): Spanish

Mission: To ensure that siblings of children with cancer are supported, honored and recognized to help them redefine the cancer experience to face the future with strength, courage and hope.

  • Outreach and Education Program- empower, educate and enable key oncology and pediatric medical and psychosocial partners to include sibling support as the standard of pediatric oncology care.
  • SuperSibs! Scholarship Program -"College Tuition Assistance Scholarships" awarded annually to high school senior siblings of a child who has (or has had) cancer
  • Sibling Comfort and Care - mailings that include education materials, support books, custom-designed and age-appropriate journals, guides, newsletters, guided imagery CDs, courage trophies and beads of courage
  • Parent Support - Resources, information, helpful tips and coping tools are sent to parents in our newly designed Parent Tool Kit.
  • Bereavement Comfort and Care -packages designed to gently help siblings through their grief, providing support to continue life with hope and strength, knowing they are not alone.
  • Sibspeak.org- website which allows diagnosed teens to get in touch with teen survivors who has sibling diagnose with cancer
  • Sib2Sib - get advice and suggestions from other teen sibs.
  • Sibling Camps- special summer camps just for siblings, great camp programs, free of charge!

Survivorship A to Z, Inc.
Contact:
212-586-5600
Population served: People living with cancer or HIV/AIDS and their caregivers, health professionals

Mission: To provide people with a life challenging condition such as cancer or HIV/AIDS with all the practical, legal and financial information they need through the entire continuum after a diagnosis.

  • Online resource for information about employment, insurance, finances, government programs, day to day living, medical care, planning ahead, emotional well-being.

The Work Site: Ticket to Work
Contact: 800-772-1213
Population served: Individuals receiving SSDI or SSI

Mission: The Ticket to Work program is for people receiving SSDI or SSI by helping them obtain employment services, rehabilitation services or other support services to achieve a vocational goal.

U.S. Equal Employment Opportunity Commission (EEOC)
Contact: 202-663-4900 or 800-669-4000
Population served:  People in the U.S. who are employees or job applicants
Other language(s): Spanish. Some information about EEOC and the laws we enforce available in: Arabic, Chinese, Korean, Russian and Vietnamese

Mission: EEOC is responsible for enforcing federal laws that make it illegal to discriminate against a job applicant or an employee because of the person's race, color, religion, sex (including pregnancy), national origin, age (40 or older), disability or genetic information.

  • Has the authority to investigate charges of discrimination against employers who are covered by the law
  • Works to prevent discrimination before it occurs through outreach, education and technical assistance programs. 
last updated on Wednesday, November 20, 2013
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