Resource Center

www.lls.org/resourcecenter

More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

The Word:

donate
Your order contains  item(s)  View Order

Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

 

American Childhood Cancer Organization (ACCO)
(formerly known as Candlelighters Childhood Cancer Foundation)
Contact: 855-858-2226
Population served: Children and adolescents who are currently fighting cancer

Mission: To provide information and support for children and adolescents with cancer and their families, to provide grassroots leadership through advocacy and awareness, and to support research leading to a cure for all children diagnosed with this life-threatening disease.

  • Provides support for parents with children fighting cancer both locally through its affiliates and online

Alex's Lemonade Stand Foundation (ALSF)
Contact:
610-649-3034
Population Served: Children with cancer and their families, caregivers, young adults, healthcare professionals and researchers related to childhood cancer

Mission: To raise money for and awareness of childhood cancer causes-especially research into new treatments and cures-and to encourage and empower others, especially children, to get involved and make a difference for children with cancer.

  • Childhood Cancer Symposium is a free annual conference for families of kids with cancer.
  • Childhood Cancer Treatment Journal- ALSF provides a free treatment journal (hard copy or online) to families of childhood cancer. Helps parents stay organized and keep track of important information.
  • Hero Ambassador Program involves family members of childhood cancer heroes who choose to get more involved with ALSF.
  • Parent to Parent Network provides the opportunity for families to connect with one another through emails, phone calls, or in person.
  • Childhood Cancer Database Project aims to better understand how childhood cancer affects families. The goal is to measure the personal and economic impact of childhood cancer and find ways to support families through the journey.
  • SuperSibs! ALSF joined forces with SuperSibs, which temporarily suspended its direct sibling support services due to a lack of funding. To sign up for updates about SuperSibs program, click here.
  • Travel Fund offers assistance to families who need to financial assistance for childhood cancer treatment at select medical institutions across the U.S. May include help with transportation, lodging, and meals. Applications must be received on behalf of a social worker or another medical representative. For more details, click here.

CancerCare
Contact: 800-813-4673
Population served: Individuals, families, caregivers and the bereaved in the U.S. affected by a cancer diagnosis
Other language(s): Spanish

Mission: To provide free, professional support services to individuals, families, caregivers and the bereaved to help them cope with and manage the emotional and practical challenges of cancer.

  • Oncology social workers are available for telephone counseling services to provide support, information and resources to help in coping with cancer
  • Offers online support groups and educational publications
  • Connect Education Workshops in which leading experts in oncology provide up-to-date information in one-hour workshops over the telephone or online
  • Door to Door Program for patients with multiple myeloma provides grants to cover transportation costs such as gasoline, taxi, bus or train fare to and from their doctor's office; must meet certain eligibility criteria
  • Financial assistance for transportation, medications, home care, child care, or durable medical equipment may be available for patients in active treatment. Eligibility guidelines vary depending on diagnosis, gender and geographic location. Call for details.

Childhood Cancer Canada Foundation
Contact:
800-489-9812
Population served: Children with cancer and their families in Canada

Mission: Dedicated to improving the quality of life for children with cancer and their families by funding research and providing support and resources.

  • Provides Family Support Kit with information and support for families of newly diagnosed children
  • Provides scholarships for childhood cancer survivors
  • Offers a benevolent fund to assist with funeral expenses
  • Provides support groups for parents and survivors
  • Offers National Teen Network which allows diagnosed teens to get in touch with teen survivors who have experienced a similar type of cancer - parents can also speak to a teen or the teen's parents
  • Offers national newsletters, eNews and Teleconference services

Childhood Leukemia Foundation
Contact:
888-253-7109
Population served: Children with cancer and their families

Mission: To educate, empower and raise awareness and the necessary funds to support programs that benefit children living with cancer. Programs improve health literacy, increase self-esteem and empower cancer victims with hope. CLF believes that by working together, we can make a difference one child at a time.

  • Hope Binders to help improve a patient's level of health literacy. Pediatric oncology patients and their families are often overwhelmed with the amount of medical and insurance information associated with a chronic illness such as cancer. The Hope Binder has 12 sections to reference and record, in their own words, medical information regarding the child's treatment. The binders also include an assortment of informational booklets regarding pain management and dietary tips, as well as, a 75 minute pre-paid telephone calling card to keep in close contact with friends and family.
  • Hugs U Wear offers human hair wigs to young cancer patients who have lost their own hair due to chemotherapy treatments. The Hug U Wear is a 100% human hair wig that is sewn into a lightweight cap and comes with a detachable hat. The child can choose from several styles to help deal with the stress and embarrassment of hair loss
  • Wish Baskets provides Baskets to help lift the spirits of these young cancer patients during a particularly difficult time in their lives. The baskets are filled with age appropriate items such as pajama bottoms with a matching pillow case, an MP3 player, individual games and a $50 Gift Card to purchase another wish item(s) of their choice

CureSearch for Children's Cancer
Contact:
800-458-6223
Population served: Children with cancer and their families
Other language(s): Spanish

Mission: To fund and support targeted and innovative children's cancer research with measurable results, and be the authoritative source of information and resources for all those affected by children's cancer.

  • Website offers information about tests and procedures, treatment options, medications, side effects and many other issues.

Foundation for Children with Cancer
Contact: 314-843-9300
Population served: Families of children with cancer who need financial assistance.
Mission: To provide direct financial assistance for families of children with cancer. 

  • Families must be referred by a healthcare professional. There is currently a $500 limit per family for financial assistance and payments go directly to the vendor.

Give an Hour (GAH)
Contact:
Website only
Population served: U.S. troops and families affected by the wars in Afghanistan and Iraq and other post-9/11 conflicts

Mission: Give an Hour asks mental health professionals nationwide to literally donate an hour of their time each week to provide free mental health services to military personnel and their families. Individuals who receive services will be given the opportunity to give an hour back in their own community.

  • In addition to direct counseling services, the providers are working to reduce the stigma associated with mental health by participating in and leading education, training, and outreach efforts in schools and communities and around military bases.

HelpPRO
Contact: 
800-652-0155 or website
Population served:  Anyone seeking mental health clinicians in the U.S.

Mission: To improve the public's access to the services of mental health clinicians and organizations. Our vision is that every person in America can readily find mental health services to meet their needs.

  • Therapist Finder carefully identifies users' needs and interests and matches these with our therapists' capabilities. Matching process increases the likelihood that users and therapists will make positive, lasting connections from their very first meeting. Database contains detailed information on thousands of mental health professionals, their services and their organizations across the country.

Kids Konnected
Contact:
949-582-5443
Population served: Children and teens in the U.S. who have a parent diagnosed with a cancer or who have lost a parent to cancer

Mission: Provides "friendship, understanding, education, and support" for children and teens who have a parent with cancer or have lost a parent to cancer.

  • Support groups are headed by Youth Leaders and co-facilitated by licensed professionals; they help kids share their feelings and gain strength from one another
  • Karen's Kids is a bereavement program for kids who have lost a mom or dad to cancer; the five-week program takes a child through the steps of grieving and teaches them how to cope with their tremendous loss
  • Hope the Bear Care Packages are individually tailored to each family; every package includes a "Hope" teddy bear for each child in the family, plus books, workbooks, brochures, and additional information to help the family better cope with cancer
  • Junior Camp is for children from 7 to12 years old; Teen Camp is for those between 13 and 18. Camps provide a fun atmosphere and an opportunity to share and connect with other peers and adults who understand what they are dealing with.

Melonhead Foundation
Contact: 888-635-6621
Population served: Children with cancer and their families

Mission: To support the needs and provides financial assistance to children with cancer and their families who are seeking alternative methods of healing.

National Dissemination Center for Children with Disabilities (NICHCY)
Contact: 800-695-0285
Population served:  Families, educators, administrators, journalists, students who are advocates for children and youth (birth to age 22) with disabilities, in the U.S.
Other language(s): Spanish

Mission: To serve the nation as a central source of information on disabilities in infants, toddlers, children, and youth.

  • Provides information on disabilities in children and youth
  • Offers programs and services for infants, children, and youth with disabilities
  • Provides information about Individuals with Disabilities Education Act (IDEA) the nation's special education law
  • Research-based information on effective practices for children with disabilities.

Pablove Foundation
Contact: 323-657-5557
Population served: Children with cancer and researchers
Other language(s): Spanish

Mission: To fund pediatric cancer research and advances in treatment, educate and empower cancer families, and improve the quality of life for children living with cancer through hospital play, music and arts programs.

  • Pablove Shutterbugs- teaches children living with cancer to develop their creative voice through the art of photography.
  • Childhood Cancer Research Grant- awards minimum two research grants $50,000.00 each to fund senior postdoctoral fellows/junior faculty (M.D. or Ph.D.) or to provide seed money to established investigators for innovative basic, translational, clinical, and epidemiological research directed to pediatric and adolescent cancer.

Patient Resource Cancer Guides
Contact:
913-725-1600
Population served: Patients and caregivers
Other language(s): Spanish

Mission: To empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.

  • Provides free educational materials, written for ease of understanding, in print and online.

Pediatric Oncology Resource Center
Contact: Website
Population served: Parents, friends and families of children who have or had childhood cancer

Mission: Provides online information for parents of children with cancer and for survivors of childhood cancer.

  • Offers website with information and resources for pediatric cancers, from diagnosis to long-term survivorship. The website is designed for parents and maintained by parents.

Rally Foundation
Contact: 404-847-1270
Population served: Children with any type of cancer and their families, supporters, researchers

Mission: To empower volunteers across the country to raise awareness and funds for childhood cancer research, to find better treatments with fewer long-term side effects and, ultimately, cures.

  • Rally Family Emergency Fund- Offers financial assistance for children under age 21 in current cancer treatment. Fund has an annual cap of $500 and a lifetime cap of $750. Funds may be used to cover a patient's cancer-related medical bills or other family costs related to treatment, e.g. transitional housing. For more details, click here.
  • Become a Rally Kid- Personal stories of cancer patients and survivors, which are inspirational and encourage everyone to Rally in our efforts to raise awareness and funds for childhood cancer research. For more details, click here.
  • Rally Athlete Training Team- Provides independent athletes with personalized fundraising pages and the opportunity to run for a Rally Kid. For more details, click here.
  • Become a Rally Researcher- Supports research projects affiliated with Children's Oncology Group or supported by the National Institute of Health and the National Cancer Institute. Awards one year research grants through a rigorous competitive peer review process. For more details, click here.

Single Fathers Due to Cancer
Contact: Website only
Population Served: Single fathers due to cancer

Mission: To help the thousands of fathers who each year lose their spouses to cancer and must adjust to being sole parents.

  • Free online resources
  • Information about local support groups

Starlight Children's Foundation
Contact: 310-479-1212
Population served: Children and teens with chronic or life-threatening medical conditions in the U.S., Canada, United Kingdom, Israel, Australia, New Zealand; teens ages 13-20 with medical issues worldwide and their teen siblings

Mission: Partners with experts to create programs that help brighten the lives of seriously ill children and their families.

  • Partner facilities offer in-hospital programs such as parties and entertainment.
  • Check with your child's treatment center to see if a Starlight Comfort Kit is available (backpack filled with toys, games, books).
  • Starbright World is an online social network for teens with chronic and life-threatening medical conditions, and their siblings. For details, click here.

The National Children's Cancer Society 
Contact: 314-241-1600 or 800-532-6459
Population served: Children with cancer and their families, caregivers, survivors, health professionals

Mission: To improve the quality of life for children with cancer and their families worldwide.

  • Provides resources to healthcare professionals involved in the treatment of childhood cancer and the many challenges associated with survivorship.
  • Online community provides a private network for parents, caregivers and survivors of childhood cancer to connect, share and offer support to one another
  • Pediatric Oncology Program (POP) provides financial and emotional support to families throughout the United States during their child's cancer treatment.  Financial assistance for lodging, meals, transportation, health insurance and medical expenses not covered by insurance. (See website for specific financial eligibility criteria.)
  • The "Beyond the Cure" Survivorship Program (BTC) provides the most up-to-date information on survivorship to help survivors and their families adapt and celebrate life after diagnosis
  • Global Outreach Program partners with pharmaceutical companies to distribute donated cancer treatment drugs and medical supplies around the world.

The National CML Society (NCMLS)
Contact:
(877) 431-2573
Population served: Patients living with CML and their families

Mission: To bring hope to individuals living with CML through educational resources, access to CML specialists, and a living, breathing network of others that can share their personal CML experiences and successes.

  • CML Connection Program provides a patient support network
  • Facilitates peer-to-peer matching
  • Provides referrals for caregivers, counseling, patient assistance programs, respite, blood and marrow drives
  • Offers Ask The CML Expert online portal
  • Sponsors educational events, wellness programs and retreats.

United Healthcare Children's Foundation
Contact: 1-855-698-4223
Population served: Children age 16 and younger, who have commercial health insurance.

Mission: The UnitedHealthcare Children's Foundation (UHCCF) is a non-profit charity dedicated to enhancing the quality of children's lives through much needed medical grants. These medical grants help improve access to medical services and items that are not covered, or not fully covered, by a family's current commercial health insurance plan.

Besides being 16 years old or younger and covered by a commercial health insurance plan, a child must be diagnosed with a current or ongoing medical need, be receiving treatment by a qualified medical practitioner in the US and meet certain financial criteria to qualify.

Grants may be provided for:

  • Help with medical services costs
  • Help with medication costs
  • Medical supplies and equipment
  • Costs associated with transplant
  • Air and ground transportation for medical appointments
last updated on Tuesday, October 21, 2014
btn_sharethis

Get Information
& Support

Contact an Information Specialist.

TrialCheck

TrialCheck

Finding an appropriate clinical trial for patients with leukemia, lymphoma or myeloma has become much easier with the TrialCheck® website.

learn more