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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

2-1-1
Population served: Everyone in the United States (check the website for availability in your area)

2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.   

Examples of service referrals include:

  • Basic human need resources: food banks, clothing, shelters, rent assistance and utility assistance
  • Physical and mental health resources: medical information lines, crisis intervention services, counseling, drug and alcohol intervention
  • Employment support: unemployment benefits, financial assistance, job training, transportation assistance and education programs
  • Support for older Americans and persons with disabilities: home healthcare, adult daycare, congregate meals, Meals on Wheels, respite care, transportation and homemaker services
  • Support for children, youth and families: childcare, family resource centers, summer camps and recreation programs, mentoring, tutoring and protective services

Alex's Lemonade Stand Foundation (ALSF)
Contact:
610-649-3034
Population Served: Children with cancer and their families, caregivers, young adults, healthcare professionals and researchers related to childhood cancer

Mission: To raise money for and awareness of childhood cancer causes-especially research into new treatments and cures-and to encourage and empower others, especially children, to get involved and make a difference for children with cancer.

  • Childhood Cancer Symposium is a free annual conference for families of kids with cancer.
  • Childhood Cancer Treatment Journal- ALSF provides a free treatment journal (hard copy or online) to families of childhood cancer. Helps parents stay organized and keep track of important information.
  • Hero Ambassador Program involves family members of childhood cancer heroes who choose to get more involved with ALSF.
  • Parent to Parent Network provides the opportunity for families to connect with one another through emails, phone calls, or in person.
  • Childhood Cancer Database Project aims to better understand how childhood cancer affects families. The goal is to measure the personal and economic impact of childhood cancer and find ways to support families through the journey.
  • SuperSibs! ALSF joined forces with SuperSibs, which temporarily suspended its direct sibling support services due to a lack of funding. To sign up for updates about SuperSibs program, click here.
  • Travel Fund offers assistance to families who need to financial assistance for childhood cancer treatment at select medical institutions across the U.S. May include help with transportation, lodging, and meals. Applications must be received on behalf of a social worker or another medical representative. For more details, click here.

Cancer Hope Network
Contact:
877-467-3638
Population served: People diagnosed with cancer and their families in the U.S.
Other language(s): Spanish, French, additional translation services available by phone

Mission:  To provide one-on-one support to people undergoing treatment for cancer and their families.

  • Provides training to individuals who have recovered from cancer so they can be matched with cancer patients currently undergoing a similar experience.

Cancer Support Community (CSC)
Contact: 888-793-9355
Population served: People affected by cancer in the U.S.
Other language(s): Spanish

Mission: To provide support, education and hope to people affected by cancer; to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

  • Offers support through a network of more than 50 local affiliates and 100 satellite locations
  • The Living Room - an online support community where you can connect with others 24/7
  • Cancer Discussion Boards are an online resource available 24 hours a day, 7 days a week and cover a variety of topics. Receive advice, support and offer tips to other people going through similar cancer experiences
  • Personal Webpage - create a private, personal webpage to help keep family and friends involved and informed. Blog, post photos or videos, and share your calendar with the people who are close to you; they can send comments and offer support or respond to your request for help as well.
  • Frankly Speaking About Cancer - Offers workshops, publications and digital content.
  • Cancer Transition - an evidence-based programs for cancer survivors who have completed their treatment (in partnership with LIVESTRONG).
  • Open to Options - helps patients identify important questions about treatment options based upon personal needs.
  • Group Loop - an online community designed to address the needs of teens (13-19) touched by cancer to connect to find support, education and hope while dealing with a cancer diagnosis. For more details click here.

CancerCare
Contact: 800-813-4673
Population served: Individuals, families, caregivers and the bereaved in the U.S. affected by a cancer diagnosis
Other language(s): Spanish

Mission: To provide free, professional support services to individuals, families, caregivers and the bereaved to help them cope with and manage the emotional and practical challenges of cancer.

  • Oncology social workers are available for telephone counseling services to provide support, information and resources to help in coping with cancer
  • Offers online support groups and educational publications
  • Connect Education Workshops in which leading experts in oncology provide up-to-date information in one-hour workshops over the telephone or online
  • Door to Door Program for patients with multiple myeloma provides grants to cover transportation costs such as gasoline, taxi, bus or train fare to and from their doctor's office; must meet certain eligibility criteria
  • Financial assistance may be available for transportation to and from cancer treatment, home care, child care, pain medication, and lymphedema supplies (breast cancer patients only).

Caregiver Action Network
Contact: 301-942-6430
Population served: People in the U.S. who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age

Mission: To promote resourcefulness and respect for the more than 65 million family caregivers across the country; to educate, support, empower and speak up for caregivers.

  • Formerly the National Family Caregivers Association
  • Family Caregiver Forum to connect with other caregivers to share support and advice
  • Peer Network offers over 100 volunteers in more than 40 states who are available to provide localized advice, information, and support
  • Story Project to share your own story and read the stories of others to open yourself to the idea that you are not alone as well as to learn how other caregivers have handled difficult challenges
  • Family Caregiver Toolbox provides tips, questionnaires, booklets, and organization tools
  • Offers 10 Tips for Family Caregivers on website
  • Listings of other caregiver organizations, home care agencies, advocacy organizations, senior living options, respite resources, and disease-specific websites
  • Coping with Alzheimer's information and videos.

CaringBridge
Contact: 651-789-2300
Population served: Anyone who is coping with illness and seeking online support and connections

Mission: To amplify the love, hope, and compassion in the world, making each health journey easier; to ensure families can connect, share and receive support during any type of health event; to create a grateful, engaged community of volunteers, supporters and donors.

  • Offers protected, online space where you can connect, share news, and receive support 24/7
  • Family and friends can visit the site to stay informed and leave supportive messages
  • SupportPlanner is an online calendar that helps family and friends coordinate care and organize helpful tasks, like bringing a meal, offering rides, taking care of pets and other needs.

Family Caregiver Alliance (FCA)
Contact:
800-445-8106
Population served: Families and friends providing long-term care at home
Other language(s): Fact Sheets in Spanish, Chinese, Korean and Vietnamese

Mission: Family Caregiver Alliance is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.

  • Provides information on topics such as care strategies, stress relief, community resources, family issues and hands-on care

Give an Hour (GAH)
Contact:
Website only
Population served: U.S. troops and families affected by the wars in Afghanistan and Iraq and other post-9/11 conflicts

Mission: Give an Hour asks mental health professionals nationwide to literally donate an hour of their time each week to provide free mental health services to military personnel and their families. Individuals who receive services will be given the opportunity to give an hour back in their own community.

  • In addition to direct counseling services, the providers are working to reduce the stigma associated with mental health by participating in and leading education, training, and outreach efforts in schools and communities and around military bases.

HelpPRO
Contact: 
800-652-0155 or website
Population served:  Anyone seeking mental health clinicians in the U.S.

Mission: To improve the public's access to the services of mental health clinicians and organizations. Our vision is that every person in America can readily find mental health services to meet their needs.

  • Therapist Finder carefully identifies users' needs and interests and matches these with our therapists' capabilities. Matching process increases the likelihood that users and therapists will make positive, lasting connections from their very first meeting. Database contains detailed information on thousands of mental health professionals, their services and their organizations across the country.

Lotsa Helping Hands
Contact: 425-417-0546
Population served: Patients, caregivers and volunteers worldwide

Mission: Lotsa Helping Hands offers free online tools designed to make life easier for caregivers and volunteers.

  • Provides a caregiver-focused online calendar, which enables members to schedule and sign up for tasks that provide respite for the caregiver (such as meals for the family, rides to medical appointments, and visits)
  • Allows communication with one another through message boards, posting personal blogs, sharing photos, and sending well wishes to the family
  • Coordinators can safely store and retrieve vital information for the family ? from medical and health records to financial and legal documents
  • Caregivers benefit from the gifts of much needed help, emotional support, and peace of mind, while volunteers find meaning in giving back to those in need.

Mesothelioma Group
Contact: 888-629-0613
Population served: Mesothelioma patients, families, caregivers, veterans

Mission: To help Mesothelioma patients and their loved ones by providing information and support.

  • Scholarship program available to students affected by cancer
  • Support groups for patients, caregivers and families

National Marrow Donor Program and Be The Match (NMDP)
Contact: 888-999-6743; outside of the United States call 612-362-3410
Population served: Patients in need of bone marrow and/or cord blood transplants, worldwide

Mission: Provides assistance to people in need of a bone marrow/umbilical cord blood transplants; and is dedicated to creating an opportunity for all patients to receive a transplant when they need it. NMDP operates the Be The Match Registry®, the world's largest listing of potential marrow donors and donated cord blood units.

  • The Caregiver's Companion Program- combines a useful toolkit with the personalized, confidential support of a caregiver coach who understands transplant and the caregiver role.
    • Receive a toolkit that includes the Caregiver's Companion book with tips, ideas and stories from other caregivers.
    • Be paired with a trained Be The Match® coach who will work with your schedule to find a time that's best for you to talk by telephone.
  • Be The Match Foundation Patient Assistance Program, for patients who pursue a transplant through Be The Match®, may be eligible for financial aid programs to help pay for the cost of a donor search and for some post-transplant expenses
  • Provides an extensive collection of education materials, webcast presentations
  • Be The Match Patient Services has a team dedicated to helping you learn about marrow and cord blood transplant as a treatment option, the overall transplant process, and what to expect after transplant
  • Peer Connect Program puts a patient/caregiver in touch with one of NMDP's trained volunteers - who are transplant recipients and caregivers - to answer questions and share their own transplant experiences.

Patient Resource Cancer Guides
Contact:
913-725-1600
Population served: Patients and caregivers
Other language(s): Spanish

Mission: To empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.

  • Provides free educational materials, written for ease of understanding, in print and online.

The National CML Society (NCMLS)
Contact:
877-431-2573
Population served: Patients living with CML and their families

Mission: To bring hope to individuals living with CML through educational resources, access to CML specialists, and a living, breathing network of others that can share their personal CML experiences and successes.

  • CML Connection Program provides a patient support network
  • Facilitates peer-to-peer matching
  • Provides referrals for caregivers, counseling, patient assistance programs, respite, blood and marrow drives
  • Offers Ask The CML Expert online portal
  • Sponsors educational events, wellness programs and retreats.

The Patient/Partner Project
Contact: 909-337-3928 or 800-366-2347
Population served: Patients and caregivers

Mission: The Patient/Partner Project is a long-term, multi-faceted program focused on raising awareness for and supporting the partners of patients who are seriously ill and thereby supporting the patients themselves.

  • Provides free monthly e-newsletter, articles via email on coping with serious illness, information about stress management, patient/caregiver online forum, online progress reporting on patient or partner, other materials for purchase.

The Ulman Cancer Fund for Young Adults
Contact:
410-964-0202
Population served: Young adults aged 15 - 39 who are affected by cancer - through their own diagnosis or that of a loved one, primarily in the Baltimore, MD and Washington, DC areas

Mission: The Ulman Cancer Fund for Young Adults enhances lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.

  • Offers programs and services providing cancer support, information on health and wellness, advocacy, and education specific to young adults dealing with cancer
  • Provides financial assistance for individuals within the geographic region we serve. Scholarships have some national eligibility
  • Promotes awareness through sports programs to empower individuals in the fight against cancer through active lifestyles
  • Some support provided is done in conjunction with other organizations to ensure the best outcomes.

Single Fathers Due to Cancer
Contact: Website only
Population Served: Single fathers due to cancer

Mission: To help the thousands of fathers who each year lose their spouses to cancer and must adjust to being sole parents.

  • Free online resources
  • Information about local support groups

Well Spouse Association
Contact: 800-838-0879
Population served: Caregivers, professionals, general public

Mission: To advocate for and address the needs of individuals caring for a chronically ill and/or disabled spouse/partner. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.

  • Coordinates national network of support groups, hosts website, provides publications, holds conferences, and organizes respite weekends for caregivers.
last updated on Thursday, May 22, 2014
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