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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org.

Because we want to be sure that our visitors find the most relevant resources, we've listed these organizations in order of relevancy from most specifically relevant to most generally relevant to the topic of this page.

CLL Global Research Foundation (CLLGRF)
Population served:
Patients, caregivers and healthcare professionals with an interest in chronic lymphocytic leukemia (CLL)

CLLGRF aims to accelerate research in CLL with the goal of finding a cure for CLL as quickly as possible. The Foundation is built on a partnership between patients, their families, the research community and other investors who want to see a cure for CLL.

  • Offers education information about the disease and its treatment
  • Provides information about CLLGRF's funded research

Medical Library Association (MLA)
Contact:
(312) 419-9094
Population served: Members of the health sciences information field worldwide

MLA is an educational organization of more than 1,100 institutions and 3,600 individual members in the health sciences information field, committed to educating health professionals, supporting health research and promoting access to health sciences information.

  • Helps to increase visibility as an information management professional
  • Provides discounts on books, meeting registration and courses
  • Provides information to develop leadership skills
  • Offers networking with colleagues
  • Provides access to the latest medical information and research

Union For International Cancer Control (UICC)
Contact: 41 22 809 1811 (Headquarters in Switzerland)
Population served: Healthcare professionals worldwide

UICC is a nongovernmental association with member organizations working in cooperation as expert groups and task forces.

  • Offers grant money for fellowships and training opportunities
  • 280 member organizations in over 90 countries

American Society of Clinical Oncology (ASCO)
Contact:
(571) 483-1300
Population served: Physicians and healthcare professionals who represent all oncology disciplines worldwide

ASCO is committed to advancing the education of oncologists and other oncology professionals, advocating for policies that provide access to high-quality cancer care and supporting the clinical trials system and the need for increased clinical and translational research. ASCO is a membership organization.

For U.S. members, ASCO offers:

  • A subscription to two oncology journal publications
  • An annual meeting
  • Sponsorship of abstracts for its annual meeting
  • Discounts on all ASCO professional, educational and scholarly publications
  • An increase in professional knowledge and enhancement of quality of care
  • Access to professional development tools

For international members, ASCO offers:

  • Oncology courses
  • Meetings
  • Grants and awards
  • Licensing opportunities

Association of Oncology Social Work (AOSW)
Contact:
(215) 564-2175
Population served: Oncology social workers worldwide

AOSW is dedicated to the enhancement of psychosocial services to people with cancer and their families.

  • Provides education, advocacy, networking and resource development
  • Provides CME, online courses and annual conference
  • Provides worldwide educational resource to locate a professional
  • Provides searchable membership directory

National Association of Social Workers (NASW)
Contact:
(800) 742-4089
Population served: A membership organization of professional social workers worldwide

NASW works to enhance the professional growth and development of its members to create and maintain professional standards and to advance sound social policies.

  •  Provides conferences, continuing education and a monthly newsletter
  • Offers legal consultation and representation
  • Offers liability and group life insurance
  • Offers professional credentials and certifications
  • Provides student scholarships and national awards
  • Offers volunteer leadership opportunities
  • Undertakes legislative advocacy and political action

Oncology Nursing Society (ONS)
Contact:
(866) 257-4667
Population served: Nurses worldwide
ONS is a membership organization of over 35,000 registered nurses and other healthcare providers dedicated to patient care, education, research and administration in oncology nursing.

Membership with ONS provides:

  • Full subscriptions to the Clinical Journal of Oncology Nursing, Oncology Nursing Forum, and ONS Connect
  • Networking opportunities through local chapters, special interest groups and national conferences in the United States
  • Access to continuing education
  • The member-only section of ONS's website provides searchable, full-text articles from Clinical Journal of Oncology Nursing and Oncology Nursing Forum, current oncology-related news, peer-reviewed clinical content and extensive continuing nursing education opportunities
  • The ONS Student Mentoring Program, a formal mentoring program for oncology nurse professionals
  • The ONS membership directory, which allows members to locate other ONS members by name, geographical area or special interest group

American Society of Hematology (ASH)
Contact:
(202) 776-0544
Population served: All hematology professionals

ASH works to further the understanding, diagnosis, treatment and prevention of disorders affecting the blood, bone marrow and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training and advocacy in hematology.
Provides information about membership and annual meetings

  • Provides links to publications and has searchable ASH publications in its Hematology Library
  • Offers searches in its job bank, training and CME options
  • Provides advocacy options and policy

American Society for Radiology and Oncology (ASTRO)
Contact:
(800) 962-7876
Population served: Radiation oncology healthcare professionals worldwide

ASTRO is dedicated to advancing the practice of radiation oncology by promoting excellence in patient care, providing opportunities for educational and professional development and promoting research in the field.

  • Offers educational courses through online learning opportunities for continuing medical education and maintenance of certification
  • Offers professional development opportunities in the way of several meetings throughout the year
  • Offers the publication International Journal of Radiation Oncology*Biology*Physics
  • Offers membership to physicians including radiation oncologists, physicists and biologists, and to nonphysicians with an interest in radiation oncology

José Carreras International Leukemia Foundation
Contact:
34 902 240 480
Population Served: Healthcare professionals worldwide

The mission of the Foundation is to contribute to finding a cure for leukemia and to improve the quality of patient's lives. It does this in three main areas:

  • Promotes the search for bone marrow and umbilical cord blood donors through its REDMO (Bone Marrow Donor Registry) Program that carries out awareness-raising, donor recruitment and search campaigns to provide greater opportunities for cure to people with leukemia. Bone marrow searches are carried out on behalf of patients in Spain and others of any nationality within the framework of the International Bone Marrow Donors World-Wide Program  
  • Supports scientific research through its grants program, mainly awarded to young researchers and open to scientists from any country in the world
  • Contributes to funding for transplant units and umbilical cord blood banks so that patients can benefit from the latest advances in technology

Mantle Cell Lymphoma Consortium (MCLC)
Contact: (212) 349-2910
Population served: Healthcare professionals and scientists worldwide

MCLC fosters collaboration, sharing of information and laboratory resources, as well as multi-institutional recruitment of clinical trials among groups working in MCL research.

  • Provides a search tool for clinical trials
  • Provides a list of members (medical professionals) and the cancer center with which they are affiliated
  • Offers research updates
  • Provides members-only section for professionals on recent news, grant opportunities and clinical trials announcements

Cutaneous Lymphoma Foundation
Contact:
(248) 644-9014
Population served: People diagnosed with cutaneous T-cell lymphoma (CTCL) and healthcare professionals worldwide

The Foundation supports patients by promoting awareness and education, advancing patient care and facilitating research.

  • Offers an email list serve for medical professionals to provide research updates
  • Provides news on upcoming medical meetings relevant to research and study of CTCL
  • Funds research

Multiple Myeloma Research Foundation (MMRF)
Contact:
(203) 229-0464
Population served: Healthcare professionals worldwide

MMRF funds research for the development of new treatments for multiple myeloma and to provide services to patients.

  • Funds more than 130 research grants at more than 70 research institutions worldwide
  • Selects grantees following a peer-review process
  • Offers an education symposia series for medical professionals in the United States

The Myelodysplastic Syndrome Foundation (MDS Foundation)
Contact:
(800) 637-0839 or (609) 298-6746 (outside the United States)
Population served: Healthcare professionals worldwide

MDS Foundation is devoted to the prevention, treatment and study of the myelodysplastic syndromes. 

  • Provides treatment updates 
  • Offers informational materials in many languages
  • Provides clinician resources, books and CDs, free of charge
  • Conducts symposia

American Association of Sex Educators, Counselors and Therapists (AASECT)
Contact: (804) 752-0026
Population served: Sexuality educators, counselors and therapists as well as physicians, nurses, social workers, psychologists, allied health professionals, clergy, lawyers, students and researchers in the United States and Canada; limited international services

AASECT is available to individuals who share an interest in promoting understanding of human sexuality and healthy sexual behavior.

  • Offers certification as a sexuality educator, counselor or therapist
  • Offers a listing of certified educators, counselors and therapists
  • Offers an annual conference for professionals

American Fertility Association (AFA)
Contact:
(888) 917-3777
Population served: Adult patients and healthcare providers worldwide

AFA provides information about fertility treatments, reproductive and sexual health and family-building options, including adoption and third-party solutions.

  • Provides a call center
  • Offers online information about options, medical treatments, coping techniques and legal/insurance issues
  • Provides online education materials and eNewsletters for patients and professionals
  • Provides a listing of reproductive specialists and therapists in the United States

National Center for Complementary and Alternative Medicine (NCCAM)
Contact: (888) 644-6226 or (301) 519-3153 (outside the United States)
Population served: Healthcare professionals and anyone interested in complementary and alternative medicine worldwide

NCCAM is the federal government's lead agency for scientific research on CAM. 

  • Explores complementary and alternative healing practices in the context of rigorous science
  • Disseminates information to professionals and the public
  • Provides educational materials about CAM therapies including herbs and supplements
  • Offers education grant opportunities for professionals to further their knowledge of CAM

International Association for Hospice and Palliative Care (IAHPC)
Contact:
(866) 374-2472
Population served: Healthcare professionals worldwide, with a focus on developing countries

The mission is to collaborate and improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research and favorable policies around the world.

  • Provides educational programs
  • Provides faculty development program to support RN/MD palliative care positions in developing countries, which includes traveling fellowships and scholarships
  • Provides information on professional membership
  • Provides a listing of hospice and palliative care journal publications
  • Provides a listing of tools/resources for professionals
  • Provides the Twinning Program where hospice/palliative care units can exchange information, reports, teaching materials and modules which may lead to exchange visits by staff members

CML Advocates Network
Population served:
CML patients, their relatives and healthcare professionals worldwide

CML Advocates Network is a virtual network of nonprofit organizations supporting patients and their relatives by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups.

The main objectives of the CML Advocates Network website are:

  • To provide a worldwide Web directory of CML patient groups, to allow patient groups to find national support groups in other countries
  • To provide a platform of communication for CML patient advocates, e.g., to share best practice on cancer patient advocacy
  • To provide updated conference information
last updated on Monday, June 20, 2011
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