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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Blood and Marrow Transplantation Finances

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

2-1-1
Population served: Everyone in the U.S. (check the website for availability in your area) 

Mission: 2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.  

Examples of service referrals include:
  • Basic human need resources: food banks, clothing, shelters, rent assistance and utility assistance
  • Physical and mental health resources: medical information lines, crisis intervention services, counseling, drug and alcohol intervention
  • Employment support: unemployment benefits, financial assistance, job training, transportation assistance and education programs
  • Support for older Americans and persons with disabilities: home healthcare, adult daycare, congregate meals, Meals on Wheels, respite care, transportation and homemaker services
  • Support for children, youth and families: childcare, family resource centers, summer camps and recreation programs, mentoring, tutoring and protective services.

2-1-1 Canada 
Population served:  Certain sections of Canada (check the website for availability in your area)

Mission: 2-1-1 is the telephone number of a call center that offers information and provides referrals to health and human services for everyday needs and in times of crisis. Services vary from community to community.  

Examples of service referrals include:

  • Health services and support
  • Financial and social assistance
  • Housing and utility help
  • Food assistance and meal programs
  • Senior services and home care
  • Government program assistance
  • Parenting and family programs
  • Disability support services
  • Volunteer organizations
  • Newcomer services
  • Mental health support

Andrew McDonough B+ Foundation
Contact: 302-654-6207
Population served: Families of children with cancer in the U.S.

Mission: To fund research to find cures for childhood cancers and advancements in chemotherapy; to provide emotional support and financial assistance nationwide for families of children with cancer.

  • Provides grants to minimize the financial hardship that is directly attributable to the child's illness; application form available on website.

Children's Leukemia Research Association (CLRA)
Contact: 516-222-1944
Population served: Children and adults with leukemia in the U.S., professionals

Mission: To support research efforts towards finding the causes and cure for leukemia.  

  • Limited funds to assist with the costs of outpatient chemotherapy, lab tests and post-transplant prescriptions.  Applications are mailed in November each year for assistance in January on a first-come, first-served basis
  • Offers matching dollar program, matching up to $1,500 per year in donations raised by applicant, family or friends during a specific time period
  • Funds grants for doctors conducting promising research about leukemia.

Children's Organ Transplant Association (COTA)
Contact:
800-366-2682
Population served: Patients 21 and under in the U.S., who require a life-saving organ, bone marrow, cord blood or stem cell transplant

Mission: COTA strives to make the transplant journey less stressful for patients and their families.

  • Offers guidance to families who undertake fundraising efforts to pay for medical expenses for a child undergoing a transplant. Provides information to the family's community to assure them the funds raised for transplant-related expenses are raised ethically and used appropriately. Because COTA is the trustee and manager of the money raised in your community, these funds are not taxable income and do not jeopardize participation in assistance programs. Additionally, COTA offers each patient fundraising campaign a challenge grant of up to $10,000
  • Staff travels to meet with patients, volunteers and transplant professionals, in addition to an in-house staff that is in regular communication with our families.

Cord Blood Registry
Contact: 888.CORD.BLOOD or 888.932.6568
Population served: Patients, families, caregivers
Other language(s): Spanish and Chinese

Mission: To advance the clinical application of newborn stem cells by partnering with leading research institutions to establish FDA-regulated clinical trials, exclusive to CBR families, for conditions that have no cure today.

  • Newborn Possibilities Program® offers free cord blood and tissue processing and five years of storage to qualifying families in the U.S.
  • Genetic counselors are available to discuss your family's medical history and to answer questions about how newborn stem cells might be applicable to your family.

Delete Blood Cancer (DKMS)
Contact: (866) 340-3567 United States
            +49 70 719 430 Germany
            020 3176 7620 United Kingdom
            22 882 9400 Poland
Population Served: Individuals willing to donate bone marrow and patients looking for a match worldwide
Other Language(s): Spanish, German and Polish

Mission: To delete blood cancer by empowering people to take action, give bone marrow and save lives.

  • Has over 3 million registered bone marrow donors worldwide
  • Raises awareness about the urgent need to increase the number and diversity of  bone marrow donors 
  • Provides information about registering to be a donor, organizing donor drives, and the process of donating bone marrow
  • Covers all costs for the donor during the bone marrow/stem cell donation procedure
  • Provides a suitable match of bone marrow/stem cells for the patients.

ExploreBMT 
Contact:
888-999-6743
Population served: Patients, families and caregivers impacted by a marrow or cord blood transplant
Other language(s): Other languages supported by translators

Mission: To serve as a comprehensive, guided source for transplant-related resources from diagnosis to survivorship.

  • Represents the combined effort of many reputable, patient-focused organizations to develop a one-stop online resource for anyone impacted by a marrow or cord blood transplant (often referred to as a BMT)
  • Provides disease and treatment information, including marrow or cord blood transplants

Friends of Man
Contact: 303-798-2342
Population served: Children, families, elderly, the disabled and those who fall through the safety net of available assistance

Mission: Friends of Man, the charitable arm of the Institute for the New Man, gives help to people who find themselves in a situation where they have nowhere else to turn.

  • Each case is considered on an individual basis in relation to guidelines which accompany the application
  • Referrals are accepted from professionals such as social workers, teachers, health providers, clergy
  • Examples of help provided include, but not limited to: Mobility Equipment: (prostheses, wheelchairs, van lifts, and modifications, ramps, home modifications); Medical Equipment and Procedures such as Hearing Aids, Dentures, Glasses; Clothing for Children, Food, Short-term Daycare, Prescriptions, Cobra/Health Insurance.

HelpHOPELive
Contact:
800-642-8399
Population served: Patients in need of financial help for a stem cell transplant

Mission: To enable patients and families to use community-based fundraising to meet uncovered medical expenses related to transplantation or catastrophic injury

  • Will work to raise funds on behalf of a patient with blood cancer when there is a possibility for a marrow/stem cell transplant as treatment
  • Also provides direct financial assistance: incentive grants (to recognize fundraising progress); emergency grants (one-time assistance for eligible patients).

Icla da Silva Foundation
Contact:
888-638-2870
Population served: Those in need of a stem cell transplant or anyone looking to be a bone marrow donor
Other language(s): Spanish, Portuguese

Mission: To save lives by recruiting bone marrow donors and by providing support services to children and adults with leukemia and other diseases treatable by marrow transplants.

National Foundation for Transplants (NFT)
Contact:
800-489-3863
Population served:  Patients needing tissue, bone marrow or other transplants, and their loved ones, in the U.S.
Other language(s): Spanish

Mission: To empower transplant patients to create futures with hope; to help patients and their loved ones obtain financial assistance for medical expenses.

  • Offers fundraising assistance and guidance along the way
  • Each patient may have a personal page on the NFT website, allowing donors to learn about the patient's story and easily make a donation
  • Provides extensive media outreach on behalf of the patient.

National Marrow Donor Program and Be The Match (NMDP)
Contact:
888-999-6743; outside of the United States call 612-362-3410
Population served: Patients in need of bone marrow and/or cord blood transplants, worldwide

Mission: Provides assistance to people in need of a bone marrow/umbilical cord blood transplants; and is dedicated to creating an opportunity for all patients to receive a transplant when they need it. NMDP operates the Be The Match Registry®, the world's largest listing of potential marrow donors and donated cord blood units.

  • Be The Match Foundation Patient Assistance Program, for patients who pursue a transplant through Be The Match®, may be eligible for financial aid programs to help pay for the cost of a donor search and for some post-transplant expenses
  • Provides an extensive collection of education materials, webcast presentations
  • Be The Match Patient Services has a team dedicated to helping you learn about marrow and cord blood transplant as a treatment option, the overall transplant process, and what to expect after transplant
  • Peer Connect Program puts a patient/caregiver in touch with one of NMDP's trained volunteers - who are transplant recipients and caregivers - to answer questions and share their own transplant experiences.
  • The Caregiver's Companion Program- combines a useful toolkit with the personalized, confidential support of a caregiver coach who understands transplant and the caregiver role.
    • Receive a toolkit that includes the Caregiver's Companion book with tips, ideas and stories from other caregivers
    • Be paired with a trained Be The Match® coach who will work with your schedule to find a time that's best for you to talk by telephone.

The Bone Marrow Foundation (BMF)
Contact:
212-838-3029 or 800-365-1336
Population served:  Transplant patients and families, caregivers, survivors

Mission: To improve the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs.

  • Patient Aid Program provides funding to help cover the costs of donor searches, compatibility testing, bone marrow harvesting, medications, home and child care services, medical equipment, transportation, cord blood banking, housing costs and other expenses associated with the transplant
  • One-to-One Fund is a personal fund created for a specific patient. BMF administers and maintains the Fund, and can offer support with fundraising ideas
  • Lifeline Project will post the patient's photo and story on a webpage so people can donate money directly to the patient to help cover costs associated with the transplant
  • Offers resource listings and list of transplant centers in the U.S.
  • Provides SupportLine - a free service that connects patients and caregivers undergoing a transplant with patients and caregivers who are post-transplant
  • Offers Ask the Expert - a question-and-answer service where patients can email questions to health professionals about bone marrow and stem cell transplantation
  • Survivorship Program provides resources that can address the needs of all bone marrow, stem cell, and cord blood transplant survivors, their families, and caregivers.  Includes online discussion forum and NYC-based in person support group
  • Provides publications about transplantation and related topics.

United Healthcare Children's Foundation
Contact: 1-855-698-4223
Population served: Children age 16 and younger, who have commercial health insurance.

Mission: The UnitedHealthcare Children's Foundation (UHCCF) is a non-profit charity dedicated to enhancing the quality of children's lives through much needed medical grants. These medical grants help improve access to medical services and items that are not covered, or not fully covered, by a family's current commercial health insurance plan. 

Besides being 16 years old or younger and covered by a commercial health insurance plan, a child must be diagnosed with a current or ongoing medical need, be receiving treatment by a qualified medical practitioner in the US and meet certain financial criteria to qualify.

Grants may be provided for:

  • Help with medical services costs
  • Help with medication costs
  • Medical supplies and equipment
  • Costs associated with transplant
  • Air and ground transportation for medical appointments
last updated on Tuesday, April 29, 2014
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