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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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If you're a Canadian resident, we encourage you to visit The Leukemia & Lymphoma Society of Canada website for additional blood cancer information and resources in Canada.

Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

A Child's Voice Foundation
Contact: 888-837-3354
Population served: Financially disadvantaged children in Canada who are facing an illness or disability

Mission: To support and enhance the physical and emotional well-being of disadvantaged children by providing products and services not otherwise provided by levels of government, insurance or other organizations. Children are usually referred to the organization by a health or social care professional.

Programs include Angel Hair for Kids and Kids Life-Line. Types of help include, but are not limited to, the following examples:

  • Medical equipment (durable)
  • Limited in-home nursing care or therapy
  • Required short term therapies
  • Ground transportation
  • Parking permits for hospital visits 
  • Medication not covered by government or insurance
  • Dental procedures not covered by government or insurance
  • Specialized or needed furniture and equipment
  • Wigs/Hats

BC Cancer Agency
Contact: 800-663-3333
Population served: Residents of British Columbia and the Yukon who have been diagnosed with cancer and are referred by a physician

Mission: To cover the spectrum of cancer care, from prevention and screening, to diagnosis, treatment, and through to rehabilitation; to reduce the incidence of cancer, to reduce the mortality rate of people with cancer, and to improve the quality of life of people living with cancer

Operates five regional cancer centres, providing assessment and diagnostic services, chemotherapy, radiation therapy, and supportive care.

  • Communities Oncology Network - a collaborative   partnership with 19 community-based cancer centres, six community-based cancer services, and 10 consultative clinics across the province, in conjunction with the BC Cancer Agency's five regional cancer centres. Supports appropriate delivery of patient care and support in 27 other community hospitals
  • Pediatric Oncology Network enhances the community care of children and families by bringing multidisciplinary teams together to diagnose, manage, and follow-up pediatric patients with malignancies and blood disorders.
  • Family Practice Oncology Network assists the BC Cancer Agency in its mandate to improve cancer control in the province, by providing support and connections to family physicians
  • Surgical Oncology Network brings together surgeons from across BC, along with other healthcare professionals, to improve the quality of surgical oncology care
  • Hereditary Cancer Program provides information, genetic counseling, and in some cases, genetic testing for individuals and families with a strong history of cancer. The HCP team includes genetic counselors, physicians, other health care providers and researchers with expertise in cancer and medical genetics

Canadian Blood Services
Contact: 877-262-9191
Population served: All Canadians in need of blood or blood products, including stem cells
Other language(s): French

Mission: To manage the blood and blood products supply for Canadians; is a not-for-profit, charitable organization.

  • Collects approximately 850,000 units of blood annually and processes it into the components and products that are administered to thousands of patients each year
  • Manages the OneMatch Stem Cell and Marrow Network whose mission is to secure, in an expeditious way, donors for Canadian bone marrow transplant patients and for patients abroad
  • Screens every donor and tests each unit of blood or blood product collected for a variety of transmissible diseases. Ensures that Canadian transfusion medicine research and development remains at the cutting edge.
  • Committed to blood safety, effective screening and testing processes.

Canadian Cancer Society
Contact: 866-786-3934
Population served: Cancer patients and caregivers in Canada
Other language(s): French, Spanish, Chinese, Punjabi.  They also have fact sheets available in Cree, Hindi, Italian, Ojibwe, Ojicree, Persian, Polish, Portuguese, Spanish, Tamil, Tagalog, Ukrainian and Urdu.

Mission: The eradication of cancer and the enhancement of the quality of life of people living with cancer in Canada; is a national community-based organization of volunteers.  Programs vary by location although cancer information and support services are available Canada-wide.

  • Provides information about cancer and its treatment
  • Limited, short-term assistance towards cancer-related transportation, at times through a volunteer driver program
  • Limited, short-term assistance for accommodation expenses, and/or accommodation at a Canadian Cancer Society lodge
  • In some provinces/territories, partnerships may be able to assist with access to symptom management drugs
  • CancerConnection connects people living with cancer and caregivers with trained volunteers who offer encouragement and share ideas for coping - all from their unique perspective as someone who's been there
  • The online community, CancerConnection.ca, helps people who have cancer, cancer survivors and caregivers share their experiences and build supportive relationships
  • Community Services Locator is a searchable database of over 4,000 cancer-related services and resources Canada-wide.

Cancer Recovery Foundation of Canada
Contact: 866-753-0303
Population served: Children and adults in Canada diagnosed with cancer

Mission: To assist children and adults who are facing the hardships of a cancer diagnosis; to improve mental, social and emotional well-being while helping to minimize the concerns that cancer can cause. 

  • Camp Scholarship Program allows children in remission to reconnect with friends and activities by providing funding for a camp of their choice (sports, music, art, science, horseback riding, water skiing or other activities)
  • Helping Hands Fund provides emergency bridge payments directly to utility companies and landlords, ensuring that each child has a warm, safe place to call home while recovering from cancer.

Cancer Support Community (CSC)
Contact: 888-793-9355
Population served: People affected by cancer in the U.S.
Other language(s): Spanish

Mission: To provide support, education and hope to people affected by cancer; to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

  • Offers support through a network of more than 50 local affiliates and 100 satellite locations
  • The Living Room - an online support community where you can connect with others 24/7
  • Cancer Discussion Boards are an online resource available 24 hours a day, 7 days a week and cover a variety of topics. Receive advice, support and offer tips to other people going through similar cancer experiences
  • Personal Webpage - create a private, personal webpage to help keep family and friends involved and informed. Blog, post photos or videos, and share your calendar with the people who are close to you; they can send comments and offer support or respond to your request for help as well.
  • Group Loop - an online community designed to address the needs of teens (13-19) touched by cancer to connect to find support, education and hope while dealing with a cancer diagnosis. For more details click here.

Childhood Cancer Canada Foundation
Contact:
800-489-9812
Population served: Children with cancer and their families in Canada

Mission: Dedicated to improving the quality of life for children with cancer and their families by funding research and providing support and resources.

  • Provides Family Support Kit with information and support for families of newly diagnosed children
  • Provides scholarships for childhood cancer survivors
  • Offers a benevolent fund to assist with funeral expenses
  • Provides support groups for parents and survivors
  • Offers National Teen Network which allows diagnosed teens to get in touch with teen survivors who have experienced a similar type of cancer - parents can also speak to a teen or the teen's parents
  • Offers national newsletters, eNews and Teleconference services

Children's Wish Foundation International (CWFI)
Contact: 800-323-9474
Population served: Children, under the age of 18 worldwide, with a life-threatening illness

Mission: Provides an experience of a lifetime in the form of a favorite wish; to fulfill the wish for any child having a limited life expectancy with medical science as we know it today.

In addition to the Wish Program, CWFI also offers:

  • Hospital enrichment program wherein educational and entertainment materials are placed in children's hospitals
  • Family Focus Program allows Wish Families a respite from hospital or treatment life
  • Young Minds Program for children, under the age of four or who function cognitively under the age of four, may be eligible to receive: a TV with DVD player and DVD collection, CD player with music collection, toy and doll collection, etc.

CML Society of Canada
Contact:
866-931-5165
Population served:  Anyone seeking information or support for chronic myeloid leukemia (CML)

Mission: To help reduce suffering and to  improve the care and quality of life of CML patients; to provide support, education and information on CML, current and emerging treatments, and research initiatives, for people living with CML and their families.

  • Helps patients access medical, mental health and wellness professionals
  • Organizes quarterly meetings for information sharing
  • Disseminates the latest information through the website, newsletters and periodic targeted emails
  • Organizes seminars to share information from medical conferences

Drug Coverage Canada    
Contact:
Website only
Population served: Patients in Canada needing assistance with prescription medications
Other language(s): French

Mission: Drug Coverage Canada is dedicated to helping Canadians access reimbursement for prescription medications by providing information on the various types of private insurance plans, provincial/ territorial drug benefit programs, drug funding by provincial cancer agencies, and federal drug plans available in Canada.

Hospice Foundation of America (HFA)
Contact: 
800-854-3402
Population served: End-of-life care resources for professionals, patients and families
Other language(s): Chinese

Mission: Hospice Foundation of America provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the U.S. health care system and the role of hospice within it.

International Association for Hospice & Palliative Care (IAHPC)
Contact:
866-374-2472
Population served: Palliative care and hospice workers

Mission: To collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.

  • Works with individuals and organizations in developing multiple strategies targeted to raise awareness among the affiliates of the civil society and decision makers so that palliative care is provided and available to those individuals in need, to increase access and availability to analgesics and other medications, to increase the provision of services by adequately trained professionals and caregivers.

International Waldenstrom's Macroglobulinemia Foundation (IWMF) 
Contact:
941-927-4963
Population served: People diagnosed with Waldenstrom's macroglobulinemia and their loved ones, worldwide
Other language(s): Spanish, French

Mission: To offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease.

  • Provides information and educational programs that address patients' concerns
  • Promotes and supports research leading to better treatments, and ultimately, a cure
  • Hosts online forum, telephone and email lifeline network
  • Offers support groups for patients, caregivers and families.

Hope Air
Contact:
877-346-4673
Population served: Financially-disadvantaged Canadians of all ages, with a wide variety of illnesses and health issues
Other language(s): French

Mission: To arrange free flights for Canadians who are in financial need and must travel to healthcare.

Lymphoma Canada
Contact: 905-822-5135 or 866-659-5556
Population served: Patients, caregivers and those concerned with lymphoma in Canada
Other language(s): French

Mission: To empower lymphoma patients, and the lymphoma community, through education, support and research.

  • Provides education and support for individuals with lymphoma and their support network
  • Funds medical research to find a cure for lymphatic cancer
  • Advocates for the best treatment and care for lymphoma patients
  • Promotes further research and new treatments in lymphoma and rapid access to new developments

Lymphoma Foundation Canada (LFC)
Contact:
(866) 659-5556
Population served: Patients with lymphoma and their support network

Mission: provides education and support, funds medical research to find a cure for lymphatic cancer and advocates for the best treatment and care for lymphoma patients.

  • Provides general and more specific information about non-Hodgkin and Hodgkin lymphomas including causes, symptoms and information for the newly diagnosed
  • Offers support groups through local chapters
  • Offers information about medication reimbursement
  • Offers downloadable questions to ask the physician and provides Lymphoma Newsletter
  • Offers a downloadable NHL Resource Manual to track treatment and healthcare team information, provides information about disease, each subtype, staging and treatment, includes a schedule/symptom diary and journal pages

Make-A-Wish Canada
Contact:
888-822-9474
Population served: Children with life-threatening medical conditions in Canada between the ages of 3 and 18 years
Other language(s): French

Mission: To grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.

  • Grants magical wishes to children in need from coast-to-coast
  • Referrals can come from family, friends, medical personnel, teachers or social workers
  • Immediate family may be included in the wish experience
  • The child's doctor will be contacted for authorization that the child meets the medical criteria for a wish
  • The child cannot have received a prior wish from any wish-granting organization.

Myeloma Canada
Contact: 888-798-5771
Population served: People with myeloma and their caregivers in Canada
Other language(s): French

Mission: To provide education and support, raise awareness of myeloma and help to drive efforts toward improving access to clinical trials and new treatments

  • Provides educational resources
  • Offers support services to patients, families and caregivers
  • Collaborates with regional and international patient groups, leading myeloma experts, hospitals, industry, research institutions, other cancer organizations and governments
  • Offers national conferences, regional InfoSessions, scientific meetings
  • Advocates to facilitate patient access to treatments
  • Offers support groups for patients, caregivers/family including peer matching.

St. Jude International Outreach Program
Contact:
901-595-2349
Population served: pediatric blood cancer patients, their caregivers, and healthcare providers specializing in pediatric catastrophic diseases worldwide

Mission: To improve the survival rates of children with catastrophic illnesses worldwide, through the transfer of knowledge, technology and organizational skills.

  • Program develops partnerships with medical institutions and fund-raising organizations to facilitate the involvement of other agencies and organizations to support key programs and the education of local personnel.
  • Sharing knowledge and technology with the local governments, healthcare providers, and the private sector to increase the survival rates of children all across the globe.
  • Pediatric specialty committed to caring for and supporting children with cancer regardless of the family's financial or healthcare resources.
  • Clinical trials designed to provide the best available care while answering important research questions.
  • Hosts visiting fellows at its campus in Memphis, Tennessee.
  • Partner sites in various countries. Please see the website for more details on locations.

The National Children's Cancer Society (NCCS)
Contact: 314-241-1600 or 800-532-6459
Population served: Children with cancer and their families, caregivers, survivors, health professionals

Mission: To improve the quality of life for children with cancer and their families worldwide.

  • Pediatric Oncology Program (POP) provides financial and emotional support to families throughout the United States during their child's cancer treatment.  Financial assistance for lodging, meals, transportation, health insurance and medical expenses not covered by insurance. (See website for specific financial eligibility criteria.)
  • The "Beyond the Cure" Survivorship Program (BTC) provides the most up-to-date information on survivorship to help survivors and their families adapt and celebrate life after diagnosis
  • Online community provides a private network for parents, caregivers and survivors of childhood cancer to connect, share and offer support to one another
  • Provides resources to healthcare professionals involved in the treatment of childhood cancer and the many challenges associated with survivorship.
  • Global Outreach Program partners with pharmaceutical companies to distribute donated cancer treatment drugs and medical supplies around the world.

Wellspring Cancer Support Network
Contact:
416-961-1928
Population served:  All cancer patients, caregivers, survivors, health professionals in Canada. Locations in Ontario and Alberta.
Other language(s): Translation services available by phone

Mission: Wellspring provides a wide range of cancer support programs and services, at no charge, to meet the emotional, social, psychological and informational needs of people living with cancer and those who care for them.

  • Provides information about helpful government programs as well as programs that assist in preparing people for returning to work
  • Provides support through groups, short-term counseling and peer volunteers.
last updated on Thursday, May 01, 2014
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