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American Cancer Society (ACS)
Population served: People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States
Other language(s): Spanish, Chinese, Korean, Vietnamese
Mission: In the U.S., ACS is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
Provides education materials both online and in print about cancer, including blood cancers, as well as related information such as diet, exercise, complementary and alternative medicine, and disease statistics
- Offers support services via online discussion boards and in-person support groups through local chapters
- Road to Recovery, a program offered locally by some chapters, has volunteer drivers who transport patients to and from treatment appointments
- Look Good, Feel Better program for female adults and teens helps with self-image during chemotherapy and radiation treatments
- Cancer Survivors Network, a global online community, transcends geographic boundaries and builds bonds among cancer survivors and caregivers through shared experiences and feelings.
- American Cancer Society's Wig Bank provides free wigs from limited supply to needy patients suffering hair loss due to cancer treatment. Intended for those with insufficient insurance coverage for wigs. For more details, click here.
- Hope Lodges are temporary housing accommodations for patients traveling far from home for treatment. There are more than 30 lodges. For more details, click here.
International Myeloma Foundation (IMF)
Contact: 800-452-2873 or 818-487-7455
Population served: Anyone needing information on myeloma, including patients, caregivers and health professionals
Other language(s): Spanish, French, German, Italian, Russian, Japanese, Turkish, Portuguese, Korean, Polish, Greek, Hebrew, Czech, Arabic, Norwegian, Danish, Dutch, Hindi, Afrikaans, Farsi, Armenian, Hungarian
Mission: To improve the quality of life of myeloma patients and their families.
Offers disease and treatment information via toll free number and publications
Makes referrals to support groups and hosts an on-line support group
Offers seminars, workshops and webcasts
IMF Advocacy group helps guide individuals to advocate for critical health issues that affect the myeloma community.
MMORE: Multiple Myeloma Opportunities for Research and Education
Population Served: Myeloma patients, caregivers, professionals, supporters
Mission: To bring together communities to support myeloma research to find more effective treatments and a cure.
- Provides online information, slide shows and videos about myeloma, clinical trials, and navigating financial resources
- Offers online search tool for support group listings and referrals to helpful organizations.
Multiple Myeloma Research Foundation (MMRF)
Population served: Patients with myeloma, caregivers, professionals, researchers
Mission: To pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.
Provides disease and treatment information including clinical trials
Offers patient and professional educational programs and publications
Funds multiple myeloma research.
National Cancer Institute's Cancer Information Service
Population served: People with cancer and their caregivers in the U.S.
Other language(s): Spanish
Mission: To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this confidential service is a federally funded cancer education program.
Offers trained information specialists who can answer cancer-related questions on a range of cancer topics, including the most recent advances in cancer treatment.
Mission: Library of programs, organized into health centers, which continues to grow with every medical conferences and produce new interviews throughout the year
- Provides latest updates on diseases, treatment, clinical trials and healthcare centers.