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American Cancer Society (ACS)
Population served: People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States
Other language(s): Spanish, Chinese, Korean, Vietnamese
Mission: In the U.S., ACS is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
Provides education materials both online and in print about cancer, including blood cancers, as well as related information such as diet, exercise, complementary and alternative medicine, and disease statistics
Offers support services via online discussion boards and in-person support groups through local chapters
Road to Recovery, a program offered locally by some chapters, has volunteer drivers who transport patients to and from treatment appointments
Look Good, Feel Better program for female adults and teens helps with self-image during chemotherapy and radiation treatments
Offers financial support for such needs as travel expenses, temporary lodging while receiving treatment far from home, and education scholarships
Hope Lodges are temporary housing accommodations for patients traveling far from home for treatment. There are more than 30 lodges (please check with ACS for more information)
Offers camps for children currently in treatment or in remission, ages 5 to 21.
International Myeloma Foundation (IMF)
Contact: 800-452-2873 or 818-487-7455
Population served: Anyone needing information on myeloma, including patients, caregivers and health professionals
Other language(s): Spanish, French, German, Italian, Russian, Japanese, Turkish, Portuguese, Korean, Polish, Greek, Hebrew, Czech, Arabic, Norwegian, Danish, Dutch, Hindi, Afrikaans, Farsi, Armenian, Hungarian
Mission: To improve the quality of life of myeloma patients and their families.
Offers disease and treatment information via toll free number and publications
Makes referrals to support groups and hosts an on-line support group
Offers seminars, workshops and webcasts
IMF Advocacy group helps guide individuals to advocate for critical health issues that affect the myeloma community.
Multiple Myeloma Research Foundation (MMRF)
Population served: Patients with myeloma, caregivers, professionals, researchers
Mission: To pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.
Provides disease and treatment information including clinical trials
Offers patient and professional educational programs and publications
Funds multiple myeloma research.
National Cancer Institute's Cancer Information Service
Population served: People with cancer and their caregivers in the U.S.
Other language(s): Spanish
Mission: To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this confidential service is a federally funded cancer education program.
Offers trained information specialists who can answer cancer-related questions on a range of cancer topics, including the most recent advances in cancer treatment.