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Myeloproliferative Neoplasms

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

MPN Research Foundation
Contact: 312-458-4396
Population served: People diagnosed with a myeloproliferative neoplasm (MPN) worldwide
Other language(s): Spanish

Mission: To stimulate original research in pursuit of new treatments -- and eventually a cure for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms; to promote collaboration in the scientific community to accelerate research; and to serve as a powerful advocacy group for patients and their families.

  • Educates and empowers the MPN community of patients, family members, doctors and researchers
  • Distributes MPN patient brochures and a newsletter to inform patients on key advances in MPN research
  • Links patients to support groups worldwide
  • Sponsors patient conferences
  • Interfaces with government organizations on key patient issues

PV Reporter
Contact: 704-545-2799
Population served: Patients with MPNs, caregivers and healthcare professionals worldwide

Mission: To provide a comprehensive, easy to navigate resource hub for the study of Myeloproliferative Neoplasms (MPNs) such as Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis.

  • Provides MPN Search, a custom search engine and MPN News Feed for regular updates
  • Offers electronic newsletter, blog and videos
  • Lists MPN-related events, resources, and links to online support groups
last updated on Wednesday, August 27, 2014
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