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Myeloproliferative Neoplasms

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

MPD Voice
Contact:
Website only
Population served: People diagnosed with myeloproliferative disorders worldwide, professionals

Mission: To provide clear and accurate information and emotional support to everyone who suffers from a myeloproliferative disorder; to fund research towards better treatments - and one day a cure.

  • Provides disease and treatment information, tips for coping with everyday challenges
  • Information on clinical trials
  • Support services including peer to peer matching, online support group/chat
  • Offers newsletters, publications and videos
  • Sponsors several forums per year in London

MPD Support
Contact: 
Website only
Population served: Anyone in need of information and support on myeloproliferative disorders

Mission:  To offer website and free support email list with interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis.

MPN Research Foundation
Contact: 312-458-4396
Population served: People diagnosed with a myeloproliferative neoplasm (MPN) worldwide
Other language(s): Spanish

Mission: To stimulate original research in pursuit of new treatments -- and eventually a cure for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms; to promote collaboration in the scientific community to accelerate research; and to serve as a powerful advocacy group for patients and their families.

  • Educates and empowers the MPN community of patients, family members, doctors and researchers
  • Distributes MPN patient brochures and a newsletter to inform patients on key advances in MPN research
  • Links patients to support groups worldwide
  • Sponsors patient conferences
  • Interfaces with government organizations on key patient issues
last updated on Tuesday, March 25, 2014
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