Lymphoma
Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org.
Because we want to be sure that our visitors find the most relevant resources, we've listed these organizations in order of relevancy from most specifically relevant to most generally relevant to the topic of this page.
Lymphoma Research Foundation (LRF)
Contact: (800) 500-9976
Population served: People diagnosed with lymphoma and health professionals in the United States and Canada
LRF is a lymphoma-focused organization that funds lymphoma research and provides information on the disease.
- Provides a call center
- Local chapter offices
- Offers disease publications
- Provides a clinical trials information service
- Funds research worldwide
- Offers advocacy
Chronic Lymphocytic Leukemia Information Group (CIG)
Website Only
Population served: Patients and caregivers concerned with chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL)
CIG, which is associated with Lymphoma Research Foundation, is a patient advocacy group that provides information to people with CLL/SLL and their loved ones.
- Offers disease and treatment information
- Offers an Internet-based discussion group for patients and caregivers
American Cancer Society (ACS)
Contact: (800) 227-2345
Population served: People with lymphoma worldwide
ACS assists patients and their caregivers with information about diseases, financial support, support groups, lodging and medical equipment. ACS has local chapters throughout the United States to provide assistance within the community.
- Provides a call center
- Provides information about lymphomas, including skin lymphomas, disease subtypes, topics about treatment and other complementary follow-up information
- Provides links to what is new in research
- Offers printable disease guides in two formats, general and detailed
National Cancer Institute (NCI)
Contact: (800) 422-6237
Population served: People with lymphoma worldwide
NCI, a component of the National Institutes of Health, is the federal government's principal agency for cancer research and training.
- Offers a call center
- Provides educational materials about lymphoma
- Conducts clinical trials at NCI laboratories and clinics
Mantle Cell Lymphoma Consortium (MCLC)
Contact: (212) 349-2910
Population served: Patients diagnosed with mantle cell lymphoma (MCL) and healthcare professionals worldwide
MCLC was started to identify effective and curative treatment strategies for MCL. It fosters collaboration, sharing of information and laboratory resources, as well as multi-institutional recruitment of clinical trials among groups working in MCL research.
- Provides a glossary of medical terms and a search tool for clinical trials
- Provides a list of members (medical professionals) and the cancer center with which they are affiliated
- Offers research updates
Cutaneous Lymphoma Foundation
Contact: (248) 644-9014
Population served: People diagnosed with cutaneous T-cell lymphoma (CTCL) and healthcare professionals worldwide
The Cutaneous Lymphoma Foundation is dedicated to supporting patients by promoting awareness and education, advancing patient care and facilitating research.
- Offers disease publications
- Offers list serves for patients and caregivers
- Refers to additional resources for CTCL patients (specific support groups and services in the United States)
International Waldenstrom's Macroglobulinemia Foundation (IWMF)
Contact: (941) 927-4963 or, for Canada, (416) 621-7864
Population served: People diagnosed with Waldenstrom's macroglobulinemia (WM) in the United States and Canada
IWMF provides information for patients and caregivers and increases awareness of the issues related to WM. Encourages membership through any size donation.
- Offers a quarterly publication for members (IWMF Torch)
- Provides patient-to-patient telephone support
- Sponsors a listserv
- Offers support groups
- Provides disease publications
The EyeCare Foundation (ECF)
Contact: (212) 832-7297
Population served: Patients diagnosed with intraocular lymphoma and healthcare professionals
ECF provides education and support to eye cancer patients as well as information regarding eye cancer for healthcare professionals.
- Provides case studies, articles and an eNewsletter
- Provides links to resources for a number of issues related to eye cancer
- Provides a web-based patient support group
- Provides a physician finder
- Provides information for physicians
American Brain Tumor Association (ABTA)
Contact: (800) 886-2282
Population served: People diagnosed with primary central nervous system (CNS) lymphoma and scientists in the United States and Canada
The mission of ABTA is to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
- Funds research
- Provides online support services and resources for teens, adults and caregivers
- Sponsors "Sharing Hope" workshops for coping and networking
- Provides information about therapeutic recreation resources
- Offers webpages for children, including age-appropriate support and education
