Leukemia
Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org.
Because we want to be sure that our visitors find the most relevant resources, we've listed these organizations in order of relevancy from most specifically relevant to most generally relevant to the topic of this page.
American Cancer Society (ACS)
Contact: (800) 227-2345
Population served: People with leukemia worldwide
ACS assists patients and their caregivers with information about diseases, financial support, support groups, lodging and medical equipment. ACS has local chapters throughout the United States to provide assistance within the community.
- Provides a call center
- Provides information about the four types of leukemia, including National Comprehensive Cancer Network treatment guidelines, information about complementary and alternative treatment options, nutrition, etc.
- Provides links to other complementary ACS publications
- Offers printable disease guides about each type of leukemia in two formats, general and detailed
National Cancer Institute (NCI)
Contact: (800) 422-6237
Population served: People with leukemia worldwide
NCI is a component of the National Institutes of Health and is the federal government's principal agency for cancer research and training.
- Offers a call center
- Provides educational materials on leukemia
- Conducts clinical trials at NCI laboratories and clinics
Chronic Lymphocytic Leukemia Information Group (CIG)
Website Only
Population served: Patients and caregivers concerned with chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL)
CIG, which is associated with Lymphoma Research Foundation, is a patient advocacy group that provides information to people with CLL/SLL and their loved ones.
- Offers disease and treatment information
- Offers an Internet-based discussion group for patients and caregivers
CLL Global Research Foundation (CLLGRF)
Website Only
Population served: Patients, caregivers and healthcare professionals with an interest in chronic lymphocytic leukemia (CLL)
CLLGRF aims to accelerate research in CLL with the goal of finding a cure for CLL as quickly as possible. The Foundation is built on a partnership between patients, their families, the research community and other investors who want to see a cure for CLL.
- Offers education information about the disease and its treatment
- Provides information about CLLGRF's funded research
The EyeCare Foundation (ECF)
Contact: (212) 832-7297
Population served: Patients diagnosed with intraocular chronic lymphocytic leukemia and healthcare professionals
ECF provides education and support to eye cancer patients as well as information regarding eye cancer for healthcare professionals.
- Provides case studies, articles and an eNewsletter
- Provides links to resources for a number of issues related to eye cancer
- Provides a web-based patient support group
- Provides a physician finder
- Provides information for physicians
The JMML Foundation
Contact: (858) 243-4651
Population served: Children diagnosed with juvenile myelomonocytic leukemia and their families worldwide
The mission of The JMML Foundation is to cure JMML and to improve the quality of life of JMML patients and families through research, education, advocacy and charity.
- Provides a call center
- Offers disease and treatment information via their website and it is available in several different languages
- Provides financial grants of up to $500 for families in need
- Offers Little Heroes Comfort Program, which can provide a child diagnosed with JMML a special mailed package containing age-appropriate toys, crayons, coloring books and various other items
- Offers a quarterly newsletter
- Offers online support services via discussion boards
- Offers quarterly online educational sessions ("chat with an expert")
CML Advocates Network
Population served: CML patients, their relatives and healthcare professionals worldwide
CML Advocates Network is a virtual network of nonprofit organizations supporting patients and their relatives by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups.
The main objectives of the CML Advocates Network website are:
- To provide a worldwide web directory of CML patient groups, to allow patient groups to find national support groups in other countries
- To provide a platform of communication for CML patient advocates, e.g., to share best practice on cancer patient advocacy
- To provide updated conference information
