Resource Center

More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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resource_centerWelcome to The Leukemia & Lymphoma Society's (LLS's) Resource Center, where you can order free booklets and fact sheets, listen to archived audio files from past telephone and web-based education programs, find other helpful organizations and access additional resources.

Are you looking for something, but can't find it here? Please let us know!

The disease, treatment and support information on the LLS website is reviewed by clinical specialists. Please see the source or reviewer acknowledgements noted on the main disease pages.

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Q & A

  • Q: Who is the best doctor and how can I find the best treatment center for my diagnosis?

    A: Choosing a doctor can be a difficult and personal decision. LLS does not offer a list of doctors but the free LLS fact sheet Choosing A Blood Cancer Specialist or Treatment Center offers detailed information with links to tools that can assist you in making a choice.

    For more information, visit our Making Treatment Decisions and Choosing a Specialist or Treatment Center webpages. You may also want to access the "What to Ask" question guides at the top of this page.

  • Q: How do I get my medical records from a doctor?

    A: If you want to have a copy of your medical records, you must submit a written request to the hospital or doctor's office. A healthcare provider must have the patient's written authorization to disclose medical records or the information contained in them. Some hospitals have their own form that needs to be completed.

    Here is more information about organizing your medical records.

  • Q: Which side effects do I need to call my doctor about?

    A: Side effects of treatment are usually discussed with patients before the treatment is started. From the doctor's perspective, the side effects of greatest concern may be fever, breathing difficulties, hives or rashes, rapid heartbeat, confusion, and redness or pain at the IV site. From the patient's perspective, any side effect causing discomfort or limiting usual activity, such as diarrhea or nausea, is a concern. Report any side effects when they first appear. Sometimes the more common side effects can be managed with medications to reduce discomfort. To find detailed side effect information about particular drugs, see the free LLS booklet Understanding Side Effects of Drug Therapy.

  • Q: What is a remission?

    A: A remission is a complete disappearance of a disease, usually as a result of treatment. The terms "complete" or "partial" are used to explain the term "remission." Complete remission means all evidence of the disease is gone. Partial remission means the disease is markedly improved by treatment, but residual evidence of the disease is present.

  • Q: What does "Watch and Wait" or "Watchful Waiting" mean?

    A: This is an approach that is used to closely monitor a patient's condition without giving any treatment until symptoms appear or change. The doctor will monitor patients for disease progression and other signs and symptoms. It is often recommended for patients in early stages of indolent or chronic forms of blood cancers.

  • Q: Are blood cancers inherited?

    A: No. There is little to no evidence that these diseases are inherited. There are genetic components to the diseases and often there are alterations in the DNA but the cause of these changes is unknown.

  • Q: Does LLS offer any financial assistance?

    A: LLS has a Co-Pay Assistance Program that offers financial support towards the cost of insurance co-payments and/or insurance premium costs for prescription drugs. Patients must qualify both medically and financially for this program. Visit our Financial Matters webpage for more information about financial assistance resources.

  • Q: What services does LLS provide?

    A: LLS offers many free services for patient and families through its National Office and chapters across the United States and Canada, including our Information Specialists and this website. Visit the Get Information and Support and Resource Center sections to find resources such as:

    - Patient education programs
    - Free education publications
    - Local support groups
    - Online discussion boards and online chats 
    - Patti Robinson Kaufmann First Connection Program 
    - Co-Pay Assistance Program

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last updated on Thursday, January 03, 2013