Myeloma Link

Connecting African American Communities to Information, Expert Care, and Support

Myeloma Link

Connecting African American Communities to Information, Expert Care, and Support

Enhancing Myeloma Knowledge and Access to Latest Treatments in African American Communities

As black Americans are at twice the risk for myeloma as whites, The Leukemia & Lymphoma Society (LLS) has joined forces with the National Black Church Initiative (NBCI), a faith-based coalition of 34,000 churches comprised of 15.7 million African Americans, to increase access to education and treatment for myeloma in the African American communities.

This new, collaborative effort began with a pilot program in Washington, D.C. and Atlanta, on March 19, 2017, with “Myeloma Sunday” at churches in both locations.

To heighten awareness and increase knowledge about multiple myeloma and available treatment.

To empower patients to seek novel treatments and enroll in clinical trials.

To encourage patients and caregivers to take advantage of the extensive support provided by LLS.

The Leukemia & Lymphoma Society’s (LLS) new initiative in collaboration with the National Black Church Initiative (NBCI) began with a pilot program in Washington, D.C., and Atlanta, commenced on March 19, 2017, declared Myeloma Sunday.

The Myeloma Link program includes:

  • Myeloma Ambassadors (patients or caregivers) to provide support and information.
  • Myeloma Sundays consisting of a “health sermon” by a respected healthcare provider during church services
  • Health Alert fact sheets placed into church bulletins.
  • In-depth healthcare provider-led education programs that build on information provided in the Myeloma Sundays
  • Church-based support groups.
  • Directory of national and local myeloma resources
  • Master's level oncology professionals at LLS available to answer disease and treatment questions and provide additional support

To learn more about this collaborative effort, please view this video featuring Reverends Evans and Graves.

If you are interested in becoming involved in this pilot program, please contact: 1-800-955-4572 or MyelomaLink@LLS.org.

To learn more about myeloma and early signs and symptoms, please visit or call 1-800-955-4572 to speak directly to one of our Information Specialists.

Partial support for this program has been generously provided through an Innovation Impact Award from Celgene.


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