Disease Information & Support

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Financial assistance may be available to you through The Leukemia & Lymphoma Society's Co-Pay Assistance Program. For additional financial assistance resources, click here or contact an LLS Information Specialist. To speak with someone, call (800) 955-4572.

LLS is part of the Cancer Financial Assistance Coalition (C-FAC) of organizations that have joined forces to help cancer patients manage their financial challenges by:

  • helping members communicate and collaborate
  • educating patients and providers about resources and links to other organizations that provide information about C-FAC's resources
  • advocating for cancer patients regarding the financial burdens of cancer care

Help for Prescription Drug Costs

For people who have a diagnosis of cancer, medication coverage can become quite costly - especially for those who don't have insurance to cover the cost of lifesaving prescription medications. What's more, even if you have a prescription drug plan, it may not cover all costs for the drugs you need.

Health plans, states and hospitals have their own formulary - a list of prescription drugs they approve for coverage. A formulary typically includes procedures that enable access to nonformulary drugs when they're documented as medically necessary. A plan sponsor must have a process in place to grant exceptions. If the plan denies an exception, you can appeal the decision through an established process. You may also be able to negotiate with your insurance company to get a particular drug added to its formulary.

If you don't have adequate insurance to cover the cost of your prescription drugs, talk with your doctor or social worker about how to finance treatment. And explore the following resources that may be able to help with your expenses:

  • Patient assistance or prescription assistance programs, sponsored by major pharmaceutical manufacturers, provide free or reduced-cost drugs if you can't afford them. Go to RxAssist for a directory of patient prescription assistance programs and information about getting affordable or free drugs.
  • Prescription savings programs, such as Together Rx Access, which offers a free prescription savings card if you're not eligible for Medicare, don't have prescription drug coverage and meet certain household income levels. Most cardholders save between 25 percent and 40 percent on more than 300 brand-name prescription products.
  • State programs such as the National Association of Counties provide ways to cut drug costs.
  • Clinical trials for promising cancer drug therapies may offer free or reduced cost prescriptions. Check with the healthcare provider, insurance representative or study contact. Coverage varies significantly depending on the health plan and clinical trial. You may be able to gain access to investigational drugs through "Expanded Access" or "Special Exception/Compassionate Exemption" programs, sometimes offered by drug companies.
  • Co-pay assistance programs and foundations, such as the LLS Co-pay Assistance Program, help pay costs for prescription drug insurance plan premiums or co-pay obligations for specific diseases. LLS also provides information about other co-pay assistance programs. Call (877) LLS-COPAY (877-557-2672) for information.
  • The Partnership for Prescription Assistance (PPA) brings together pharmaceutical companies, doctors, other healthcare providers and patient advocacy and community groups to help eligible patients who don't have prescription drug coverage get needed medicines for little or no cost. The partnership offers access to many public and private patient assistance programs, including programs offered by pharmaceutical companies.
  • NeedyMeds is a central source of information for people who can't afford medicine or other healthcare expenses. Programs such as assistance for specific diseases and conditions, application assistance, state-sponsored programs and Medicaid sites are available.
  • Medicare has information about public and private programs that offer discounted or free medications as well as Medicare health plans that include prescription coverage.

Help for Stem Cell Transplantation Costs

Stem cell transplantation is expensive and may not be fully covered by health insurance. In addition to treatment cost, you may have significant expenses for travel, lodging, meals, phone calls, child care, donor testing and aftercare. You may need to use multiple strategies to secure enough funding to cover these costs, such as:

  • working closely with the transplant center to obtain maximum reimbursement from the insurance company
  • negotiating with healthcare providers to reduce or waive medical fees or adjust the payment schedule in cases of financial hardship
  • applying for grants and financial aid from employers, labor unions, community service agencies, religious and fraternal groups or cancer support organizations
  • forming a committee of volunteers to conduct fundraising events, sales, raffles, canister collections and letter-writing and publicity campaigns
  • cashing in on benefits from life insurance policies through "viatical settlements" (selling a life insurance policy at a discount to someone else who will collect the face value when the policyholder dies) or accelerated benefits, which can provide cash payouts to seriously ill policyholders - but be sure to discuss this strategy with a financial adviser first

These three nonprofit organizations provide information, support, financial support services and patient advocacy for transplant candidates, recipients and their families:

last updated on Thursday, February 20, 2014
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