Other Disease Studies
Another type of study that blood cancer patients and their relatives can participate in is a nontherapeutic study. Nontherapeutic studies aren't considered clinical trials because they don't involve the study of new diagnostics or treatments for diseases. Instead, they're developed to gain a better understanding of disease-incidence patterns or the consequences of specific treatments for a specific disease.
If you'd like to consider taking part in a nontherapeutic disease-specific study, talk with your doctor about the benefit of participating.
In all cases, you should be asked to sign a consent form that defines the study's purpose and what's expected from the participants.
The Leukemia & Lymphoma Society (LLS) provides a list of nontherapeutic studies that have statements of compliance with Health Insurance Portability and Accountability Act (HIPAA) regulations and that require informed consent from participants. The information provided on specific studies doesn't represent an LLS endorsement of a particular study, group, company, health institution or product. Visit the Disease Registries page to access disease registries and nontherapeutic studies.