It's important that your child's doctor is experienced in treating children with juvenile myelomonocytic leukemia (JMML) or works in consultation with a JMML specialist. This type of specialist is usually called a hematologist oncologist.
Finding the Best Treatment Approach
There is no one standard treatment for JMML that's used or accepted throughout the international medical community. However, two widely used JMML treatment protocols (practice guidelines) are based on studies by two groups:
- The Children's Oncology Group (COG) JMML Study in North America. COG is the world's largest childhood cancer research organization and supported by the National Cancer Institute.
- The European Working Group of MDS (EWOG-MDS) and JMML in Childhood Study. EWOG-MDS is an international cooperative study group.
As you develop a treatment plan with your child's doctor, be sure to discuss:
- the results you can expect from treatment
- potential side effects, including late-term effects and long-term effects
- the possibility of participating in a clinical trial, where your child will have access to advanced medical treatment that may be more beneficial than standard treatment