Mid-America Chapter

www.lls.org/mid

Patient Support Programs


The Leukemia & Lymphoma Society's Mid-America Chapter offers a wide range of free educational and support programs for patients, their families, caregivers and healthcare professionals.

For more information about any of the following programs, call us at 913.262.1515.

 

Patti Robinson Kaufmann First Connection Program

If you've recently been diagnosed with a blood cancer, you may find it helpful to speak with someone who's been through treatment and learned how to manage the same disease.

The Patti Robinson Kaufmann First Connection Program is a peer-to-peer program that links newly diagnosed patients and their families with trained volunteers who have experienced blood cancer firsthand and can understand your experience. Trained volunteer survivors offer caring support and information by sharing their special perspective on the recovery process.

For more information, call us at 913.262.1515 to request a First Connection match with a peer support volunteer. This is open to patients AND caregivers.

 

Family Support Groups

Open communication is critical for coping with the feelings that arise during illness. Family Support Groups are open to patients, survivors and caregivers. They feature sessions led by local healthcare professionals where you can share your concerns, fears, problems and experiences in a comfortable and caring setting.

 

Local Support Groups near Kansas City

Conquering Myeloma
Location: Sylvester Powell Jr. Community Center, 6200 Martway, Mission KS 66202
Contact (913) 262.1515 or Amy.Michale@lls.org to register and for details
Date: Second Wednesday evening of every month
Facilitators:  Wendy Thomas, MSN, Wendy Lyles, MS, RN, OCN

Young Adults "What's Your Hang-Up?" Telephone Family Support Group for patients
Location: free from your phone! For patients/survivors ages 18 to 39.

Contact (913) 262-15151 or Amy.Michale@lls.org to register and for upcoming topics.

Date: Second Thursday evening from 8 to 9:15 p.m. CST (Email Amy.Michale@LLS.org or call (913) 262-1515 for dial-in information.)
Facilitators: healthcare professionals

Telephone Mixed Diagnosis Family Support Group for patients and caregivers
Location: free from your phone!

Contact (913) 262-15151 or Amy.Michale@lls.org to register and for upcoming topics.

Date: Second Tuesday morning from 10 to 11 a.m. CST (Email Amy.Michale@LLS.org or call (913) 262-1515 for dial-in information.)
Facilitators: Marilyn Kile, APRN, AOCN and Brenda Winkler, LMSW, OSW-C

Supporting the Supporters for caregivers of any type of cancer
Location: University of Kansas Cancer Center, 2330 Shawnee Mission Parkway, Atrium Conference Room, Westwood, KS 66205

Contact (913) 262-15151 or Amy.Michale@lls.org to register and for more info.

Date: First and Third Mondays at noon to 1 p.m. CST
Facilitator: Haylie Colby, LMSW

Local Waldenstrom Macrogloblinemia Support

Location: The University of Kansas Cancer Center, Atrium Conference Room

2330 Shawnee Mission Pkwy, Westwood, KS
Contact (913) 262-15151 or Amy.Michale@lls.org to register and for location information.
Date: quarterly; PLEASE call for upcoming dates and information.

Facilitators: Karen Davis and Lynn Marzinski, RN

WE WILL!
We Will is a group specially created for 13- to 19-year-olds conquering cancer.
Through social networking and special events, We Will empower each other to connect and unite in celebration of survivorship. For more information, pl
ease contact (913) 262.1515 or Amy.Michale@lls.org to register.

Local Amyloidosis Support

Location: The University of Kansas Cancer Center, Atrium Conference Room

2330 Shawnee Mission Pkwy, Westwood, KS
Contact (913) 262-15151 or Amy.Michale@lls.org to register and for location information.
Date: semi-annually; PLEASE call for upcoming dates and information.

Facilitators: Muriel Finkel and Lynn Marzinski, RN

Turning Point:  The Center for Hope and Healing Therapeutic play, medical play, teen chat and parent consultation sessions are offered free to assist children and parents living with advanced stage cancer. There is a maximum of 5, 1-hour sessions per family, with the option of paying for continued counseling.  Please call (913) 383.8700 to register.

Programs for Children and Parents
The Leukemia & Lymphoma Society and Turning Point, the center for hope and healing, invite you and your child to pre-register for one of our fun educational and supportive programs for kids. Led by an extraordinary team of experienced and compassionate child life professionals, art therapists, and social workers, these programs teach children creative ways of coping with the change of having a parent who is facing serious or chronic illness. Kids learn methods for managing stress that they will carry with them throughout their lives. The program is free. Pre-registration is required For more information or to register for the children's programs, call Turning Point at (913)383.8700. www.turningpointkc.org
                                                                                                                             

Online Support Groups

Our online support groups offer weekly sessions where you can share and receive support from the comfort of your home. Each session is an hour and a half and moderated by a trained professional. All sessions are password protected and provided in partnership with the Cancer Support Community. For more information, see Online Support Groups.

Online Chats

Our weekly two-hour online chats provide a friendly forum to share experiences and offer support for people living with non-Hodgkin lymphoma or chronic myeloid leukemia and for young adults (aged 18-39) living with blood cancer. Each chat is moderated by an oncology social worker. For more information, see Online Chats.

The Trish Greene Back to School Program for Children with Cancer

Returning to school after cancer treatment can be a tough adjustment for young survivors. The Trish Greene Back to School Program for Children with Cancer helps children and youth cope with life after treatment and teaches parents, classmates, teachers and healthcare professionals how to deal with the issues surrounding childhood cancer. Program videos and materials are available for students from preschool to high school. For more information, call us at 913.262.1515.

Co-Pay Assistance Program

Dealing with cancer is hard enough without having to worry about the financial burden. The Co-Pay Assistance Program helps you pay your insurance premiums and meet co-pay obligations. We'll also help you find additional sources of financial help. For more information, see Co-Pay Assistance.

Honored Hero Program

Our honored heroes provide inspiration and support for the LLS fundraising programs and are symbols of strength for others dealing with challenges in their lives. An honored hero is anyone who is being treated for, or is a survivor of, leukemia, lymphoma or myeloma. 

You can participate on several levels, including sharing your story, creating artwork, writing letters or attending fundraising events. For more information, call us at 913.262.1515.

last updated on Wednesday, March 12, 2014
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